Organizations Filed Purposes:
PXE INTERNATIONAL INC. INITIATES AND CONDUCTS RESEARCH, EDUCATES CLINICIANS, AND SUPPORTS INDIVIDUALS AFFECTED BY PSEUDOXANTHOMA ELASTICUM (PXE).
PXE INTERNATIONAL INITIATES, CONDUCTS, AND SUPPORTS RESEARCH ON PSEUDOXANTHOMA ELASTICUM (PXE). WE MANAGE A REGISTRY AND BIOBANK, AN EPIDEMIOLOGICAL STUDY, AND A NUMBER OF OTHER BIOMEDICAL STUDIES. WE RECRUIT FOR CLINICAL TRIALS.
PXE INTERNATIONAL SUPPORTS AFFECTED INDIVIDUALS AND THEIR FAMILIES BY OFFERING CLEAR, CONCISE, AND UP-TO-DATE INFORMATION. WE USE REGIONAL MEETINGS, WEBINARS, OUR WEBSITE, YOUTUBE, TWITTER, FACEBOOK, BIENNIAL CONFERENCES, AND A GOOGLE GROUPS CHAT LIST TO ENABLE A ROBUST, INTERACTIVE NETWORK OF SUPPORT. WE ALSO OFFER CONTACT INFORMATION FOR OTHERS WITH PXE WHO HAVE AGREED TO BE CONTACTED, A 24-HOUR ACCESS PHONE LINE, AND A ONE-WAY ANNOUNCEMENTS NEWSLETTER EMAIL LIST.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Sharon Terry | CEO | 20 | $0 |
| Joseph Maas | TREASURER | 4 | $0 |
| Kathy Hersey | DIRECTOR | 1 | $0 |
| Jessica Harper | DIRECTOR | 1 | $0 |
| Barbara Drewicz | DIRECTOR | 6 | $0 |
| Lionel Bercovitch | MEDICAL DIRECTOR | 4 | $0 |
| Patrick Terry | PRESIDENT | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202022279349302367_public.xml