Organizations Filed Purposes:
RAAP is a coalition of life sciences and patent stakeholders that explores creative policy solutions to address structural issues is access and coverage. Our priority is to help ensure rare disease patients have access to the care and treatments they need.
RAAP is comitted to exploring policy solutions to adress structural issues in access and coverage. RAAP will engage with research, public education, issue advocacy, and lobbying activities to shine a light on the challenges facing rare disease patients and offer common sense solutions to them.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Michael Eging | Chairman | 20 | $110,000 |
| Evan Kozlow | Treasurer | 20 | $40,000 |
| Jennifer Beachell | Director | 5 | $0 |
| Shelly Rosenstock | Secretary | 5 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202141739349300969_public.xml