Organizations Filed Purposes:
EDUCATION, AWARENESS, ADVOCACY, AND SUPPORT: APFED HOSTED ITS ANNUAL PATIENT CONFERENCE, WITH AN ENDURING VIRTUAL COMPONENT FOR OFF-SITE ATTENDEES. WE CELEBRATED NATIONAL EOSINOPHIL AWARENESS WEEK BY DISSEMINATING RESOURCES AND PROVIDING ONLINE SUPPORT AND EDUCATION. WE AWARDED TWO COLLEGE SCHOLARSHIPS TO INDIVIDUALS WITH EGID. APFED UPDATED AND SHARED ONLINE PATIENT AND HEALTHCARE PROVIDER EDUCATIONAL CONTENT, AND DISSEMINATED MONTHLY NEWS TO OUR COMMUNITY. WE ADVOCATED, AND WORKED WITH IES AND CDC ON ICD-10 CODES FOR HES, EOSINOPHILIC PNEUMONIA, EOSINOPHILIC ASTHMA, DRESS, AND FOR A NAME INCLUSION OF EGPA. WE PARTICIPATED IN EDUCATION REGARDING MEDICAL FOODS. WE PUBLISHED A WHITE PAPER ABOUT HES PATIENT PERSPECTIVES IN DRUG DEVELOPMENT FOLLOWING A CONFERENCE ON HES. WE PARTICIPATED IN A COLLABORATIVE TO IDENTIFY UNMET NEEDS IN GI DISORDERS AND SERVED ON THE ON NIH RARE DISEASE DAY 2020 PLANNING COMMITTEE.
RESEARCH: APFED SHARED FUNDING OPPORTUNITIES FOR INVESTIGATORS THROUGH OUR HOPE ON HORIZON RESEARCH PROGRAM AND IN COLLABORATION WITH AAAAI; TO PAY OUT IN 2020. WE AWARDED TWO ABSTRACT AWARDS FOR RESEARCH PRESENTED AT THE ANNUAL MEETINGS OF AAAAI AND NASPGHAN. WE CONTINUE TO BE AN ACTIVE PARTICIPANT IN THE RARE CLINICAL DISEASE RESEARCH NETWORK AND THE CONSORTIUM OF EOSINOPHILIC GASTROINTESTINAL DISEASE RESEARCHERS (CEGIR), PRESENTING THE PATIENT PERSPECTIVE AT CEGIR MEETINGS. APFED CO-AUTHORED MULTIPLE SCIENTIFIC PUBLICATIONS IN COLLABORATION WITH CEGIR AND WITH OTHER INVESTIGATORS. DATA FROM AN APFED SURVEY OF PATIENT-PERCEIVED CHALLENGES AND NEEDS PERTAINING TO TRANSITIONING CARE FROM PEDIATRIC TO ADULT FOR MANAGEMENT OF EGID WAS PRESENTED AT A SCIENTIFIC MEETING. WE DISSEMINATE INFORMATION ABOUT RESEARCH ACTIVITIES RECRUITING PATIENTS.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Mary Jo Strobel | EXECUTIVE DIRECTOR | 50 | $79,880 |
| Juliet Ross | DIRECTOR | 10 | $0 |
| Donalyn Denise Mack | DIRECTOR | 15 | $0 |
| Giles M Schanen | SECRETARY | 10 | $0 |
| Dawn Mccoy | DIRECTOR | 15 | $0 |
| Kathleen Sable | DIRECTOR | 15 | $0 |
| Gerald J Gleich | MEDICAL ADVISOR | 5 | $0 |
| Tom Fanning | WEB COORDINATOR | 15 | $0 |
| Pradyumna Tummala | CHAIRMAN | 5 | $0 |
| Michael Piansky | TREASURER | 20 | $0 |
| Elizabeth Mccarty | VICE PRESIDENT | 5 | $0 |
| Wendy M Book | PRESIDENT | 15 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202002589349300615_public.xml