Organizations Filed Purposes:
To provide sickle cell community-based organizations (CBOs) with the necessary infrastructure, support, training and resources
Annual Leadership summit and General Assembly meeting: Fourth year as we work to provide the leaders and influencers of the sickle cell community with education, training and an ongoing sense of community and unity as we identify and tackle the major patient-identified problems.
Patients and Family Educational Convention: The 2019 agenda placed heavy emphasis on becoming Expert Patients, while learning to advocate, educate, and encourage ourselves and each other. Sessions included tracks designed specifically for adults, teens and
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Dr Lakiea Bailey | EXECUTIVE DIRECTOR | 168 | $8,250 |
| Doris Bailey | ASSOCIATE DIRECTOR OF FINANCE | 100 | $5,750 |
| Dominique Friend | PRESIDENT OF THE GENERAL ASSEMBLY | 30 | $0 |
| Eric Nti Frempong | DIRECTOR OF FINANCE | 2 | $0 |
| Dr Ramona Lawrence | DIRECTOR OF RESEARCH | 20 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202022369349300102_public.xml