Organizations Filed Purposes:
TO PROVIDE FINANCIAL AND EDUCATIONAL RESOURCES TO PATIENTS AND FAMILIES WITH CYSTIC FIBROSIS.
WE PROVIDED FINANCIAL ASSISTANCE TO OVER 115 CYSTIC FIBROSIS PATIENTS AND THEIR FAMILIES. THE ASSISTANCE WE PROVIDED INCLUDED, BUT WAS NOT LIMITED TO: PAYMENTS OF HEALTHCARE, INSURANCE PREMIUMS, DEDUCTIBLES AND CO- PAYMENTS, FOOD EXPENSES AND UTILITY BILLS DURING TIME OF CRISIS. WE PROVIDE EDUCATION TO OVER 1500 FAMILIES THROUGH A QUARTERLY NEWSLETTER, BLOG AND FACEBOOK. WE MAINTAIN A COMPREHENSIVE EDUCATIONAL WEBSITE FOR CYSTIC FIBROSIS CONCERNS. AMOUNTS PAID ARE DETERMINED BY SOCIAL WORKERS UNASSOCIATED WITH THE FOUNDATION. AMOUNTS ARE SENT DIRECTLY TO INSURANCE COMPANIES, MORTGAGE COMPANIES, ETC. BECAUSE OF THE CONFIDENTIALLY REGULATIONS, THE FOUNDATION DOES NOT KNOW THE PATIENT IDENTIFIED WITH THE FUNDS.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Pam Baker | TRUSTEE | 1 | $0 |
| Toby Bartlett | TRUSTEE | 1 | $0 |
| David Adkins | TRUSTEE | 1 | $0 |
| John D Pickering | TRUSTEE | 1 | $0 |
| Kc Conway | TREASURER | 5 | $0 |
| Keith Burroughs | SECRETARY | 2 | $0 |
| Susan Burroughs | PRESIDENT | 10 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202040869349300814_public.xml