Organizations Filed Purposes:
The organization is dedicated to improving the quality of life of children with rare diseases and complex medical conditions.
The organization provides assistance with paperwork, including Medicaid waivers, grants & scholarships, and insurance claims and appeals. The organization also assists for advocacy for school IEP's, procuring medical equipment, help with home education & therapy tools, and locating and establishing support.
The star of hope program provides gifts and therapy to children that fit the organization's mission statement.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Lisa Higgins | Executive Dir. | 15 | $0 |
| Ronald E Severtis Do | Trustee | 1 | $0 |
| Matthew J Higgins | Trustee | 1 | $0 |
| Pam Brems | Secretary | 1 | $0 |
| Susie C Adams | Treasurer | 1 | $0 |
| Jennifer E Parrot Esq | President | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/201532299349303148_public.xml