Organizations Filed Purposes:
THE MUSCULAR DYSTROPHY FAMILY FOUNDATION USES THE POWER OF GIVING TO INCREASE THE QUALITY OF LIFE AND INDEPENDENCE OF PEOPLE WITH MUSCULAR DYSTROPHY - AND EMPOWER THEIR FAMILIES - THROUGH ADVOCACY, EDUCATION, AND FINANCIAL ASSISTANCE.
WE ASSIST PERSONS WITH NEUROMUSCULAR DISEASES, INCLUDING MUSCULAR DYSTROPHY. EACH OF THE PAST 7 YEARS, WE HAVE PURCHASED AN ACCESSIBLE VAN FOR A FAMILY, AND WE HAVE PROVIDED OVER $350,000 IN ADAPTIVE EQUIPMENT TO FAMILIES OVER THE PAST 7 YEARS.
THE MDFF ANNUAL ACCESSIBLE VAN GIVE-AWAY - THE KAMARIA DIX FAMILY OF INDIANAPOLIS, INDIANA WERE THE RECIPIENTS OF THE MDFF ACCESSIBLE VAN GIVE-AWAY PROGRAM IN 2020. THE COST OF THE ACCESSIBLE VAN WAS $36,485.
THE MDFF ADAPTIVE EQUIPMENT PROGRAM - PROVIDING GOODS AND SERVICES FOR THOSE WITH MUSCULAR DYSTROPHY, AS FOLLOWS, IN 2020:BATHROOM REMODEL: $29,426WHEELCHAIR REPAIRS/UPGRADES: $11,221DAILY NEEDS: $7,826RAMPS/PATHWAYS: $7,655VAN CONVERSION/REPAIRS: $5,404HOME REMODEL: $724WHEELCHAIR NECKLACES: $660LEG BRACES: $185TOTAL: $63,101
MDFF PROVIDED OTHER CLIENT SERVICES FOCUSED ON SOCIAL ACTIVITIES LIKE A CHRISTMAS PARTY FOR KIDS AFFECTED BY MUSCULAR DYSTROPHY AND A "COVID FUND" FOR MUSCULAR DYSTROPHY FAMILIES MOST AFFECTED BY THE COVID19 VIRUS, AS WELL AS OTHER SERVICES, AS FOLLOWS:CHRISTMAS PARTY: $13,710COVID FUND: $10,000MD EXPO: $4,499ADOPT A MD FAMILY: $1,678SEEVER SCHOLARSHIP: $1,000TOTAL: $30,887
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Leslie Kelley | DIRECTOR | 1 | $808 |
| Nikki Hybben | DIRECTOR | 1 | $0 |
| Justin Rumer | DIRECTOR | 1 | $0 |
| Ahmed Ismail | DIRECTOR | 1 | $0 |
| Matt Griffin | DIRECTOR | 1 | $0 |
| Jeff Frehill | DIRECTOR | 1 | $0 |
| Mindy Cameron | DIRECTOR | 1 | $0 |
| Jim Badger | DIRECTOR | 1 | $0 |
| David Thyen | DIRECTOR | 1 | $0 |
| Andy Cowen | SECRETARY | 1 | $0 |
| Pam Fowler | TREASURER | 1 | $0 |
| Matt Sigler | VICE PRESIDENT | 5 | $0 |
| Tim Doyle | PRESIDENT | 24 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202121349349305832_public.xml