Organizations Filed Purposes:
FVI had the honor of providing information, training and one-on-one support in 2019 to more than 2000 families of children and youth with special health care needs and/or disabilities. Our interventions allowed them to become more independent in their abilities to navigate the numerous governmental and health care systems that impact their children's care, as well as to make more educated decisions about available treatments and resources. We also provided them with the tools to grow in strength as self-advocates in their quest to add quality to their children's lives and to their own. Lastly, we educated and collaborated with professionals throughout Indiana to ensure that they had the information to serve as resources, not only to the families that we support, but to all families of children with special health care challenges. This program is funded with the help of a grant from the US Health Resources & Services Administration.
Funds awarded by the AWS Foundation of Fort Wayne, Indiana, support concentrated services to families and professionals in 11 counties. In addition to activities similar to those mentioned above, these funds allow for a dedicated health information specialist to live and work in the region. She offers the same information, training and one-to-one support as FVI does statewide, with the added benefit of living in the community. She is active on several regional committees and hosts a monthly support group for parents with children who have special healthcare needs and disabilities.
FVI held its third successful Heart to Heart conference in October 2019, a day of learning and support for families of children and youth with special health care needs and/or disabilities and the professionals who serve them. Attendees were able to participate in sessions that addressed those issues most critical to them, including family leadership and advocacy, funding care and services, Medicaid waivers, transitioning to adult health care, special education and more. The confrerence also included opportunities for the families to make one-on-one contact with relevant vendors who were present at the event. Surveys completed by the participants indicated that they found the sessions to be of great value in helping them to become more knowledgeable about the systems and processes that impact their children's daily lives.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Holly Wheeler | Executive Dir. | 40 | $65,000 |
| Jennifer Akers | Family to Family Network Director | 40 | $60,000 |
| Kerry Bonney | Health Information Specialist | 13 | $12,103 |
| Stephanie Gabbert | Treasurer | 0 | $0 |
| Sarah Trostle | Secretary | 1 | $0 |
| Blake Johnson | President | 3 | $0 |
| Lauren Flanagan | Vice President | 1 | $0 |
| Denise Carpenter | Director | 0 | $0 |
| Elizabeth Tollefson | Director | 0 | $0 |
| Cynthia Bishop | Director | 0 | $0 |
| Marie Maher | Director | 0 | $0 |
| Chris St Paul | Director | 1 | $0 |
| Jennifer Olson | Director | 1 | $0 |
| Loui Lord Nelson | Director | 1 | $0 |
| Judith Ganser | Director | 1 | $0 |
| Stephen Viehweg | Director | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202001339349300520_public.xml