INDIANA CHAPTER OF THE ALS ASSOCIATION INC
7202 EAST 87TH STREET SUITE 102, INDIANAPOLIS, IN 46256 www.alsaindiana.org

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Organizations Filed Purposes: TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.

INDIANA CHAPTER OF THE ALS ASSOCIATION (ALSA), A NATIONAL NOT-FOR-PROFIT ORGANIZATION, PROVIDING SERVICES TO PATIENTS WITH AMYOTROPHIC LATERAL SCLEROSIS (ALS) AND THEIR FAMILIES.

ALS CLINICS AND CERTIFIED CENTER SUPPORT: TO SUPPORT THE HIGHEST QUALITY HEALTHCARE FOR PEOPLE WITH ALS, THE ORGANIZATION PARTNERS WITH AND FINANCIALLY SUPPORTS COMMUNITY HEALTHCARE PROVIDERS IN OFFERING ALS MULTIDISCIPLINARY CLINICS. THESE CLINICS ARE EVIDENCE BASED MODELS THAT PROMOTE COORDINATED CARE FOR PEOPLE WITH ALS. THESE CLINICS ARE HELD AT ONE OF THE ALS ASSOCIATION CERTIFIED CENTERS OF EXCELLENCE AT IU NEUROSCIENCE CENTER, RECOGNIZED ALS CENTER AT RICHARD L. ROUDEBUSH VA MEDICAL CENTER, AS WELL AS THE NEWLY ESTABLISHED ALS CLINIC, OPENED NOVMEBER 2019, IN PARTNERSHIP WITH PARKVIEW NEUORSCIENCE. THE CHAPTER HAS ASSISTED WITH LICENSED SOCIAL WORK STAFFING, NUTRITION CART, SUPPLIES, AND FINANCIAL COMMITTMENT. DURING THE YEAR ENDED JANUARY 31, 2020, THE CHAPTER SUPPORTED 831 CLINIC APPOINTMENTS FOR FAMILIES WITH ALS.

EDUCATION & SUPPORT PROGRAMS: STRATEGICALLY BASED IN AND NEAR PATIENT'S HOME COMMUNITIES, CARE SERVICE COORDINATORS WORK DIRECTLY WITH PEOPLE WITH ALS AND THEIR FAMILIES TO HELP THEM NAVIGATE MANAGEMENT OF ALS AS WELL AS ACCESS COMMUNITY RESOURCES. IN FISCAL YEAR END JANUARY 31, 2020 CARE SERVICE COORDINATORS SERVED 515 PATIENTS PROVIDING 3,308 HOURS OF SOCIAL WORK. COORDINATORS ARE OFTEN THE CRUCIAL SUPPORT PEOPLE NEED WITH GUIDANCE ON FINANCE, EMPLOYMENT ISSUES, INSURANCE QUESTIONS, SOCIAL SECURITY DISABILITY, MEDICARE, MEDICAID AND LONG-TERM CARE PLANNING. COORDINATORS ASSISTED 7 MONTHLY SUPPORT GROUPS ACROSS THE REGION WITH 418 ENGAGEMENTS. CARE SERVICES STAFF ALSO PROVIDED PROFESSIONAL EDUCATION FOR COMMUNITY PARTNERS SUCH AS HOSPICE, HOME HEALTH AND HOME CARE AGENCIES TO INCREASE THEIR KNOWLEDGE OF ALS. THE CHAPTER HAS A VERY EXTENSIVE LENDING PROGRAM. WE RECOGNIZE THE IMPORTANCE OF PROPER EQUIPMENT AND ASSISTIVE DEVICES IN MAINTAINING SAFETY, INDEPENDENCE AND IN MAXIMIZING PATIENTS FUNCTIONALITY AND MINIMIZING FINANCIAL COST ASSOCIATED WITH ALS. THE EQUIPMENT LOAN CLOSET PROGRAM PROVIDES ACCESS TO THE NEEDED MEDICAL EQUIPMENT EITHER AS A BRIDGE WHILE AWAITING INSURANCE APPROVAL OR TO THOSE PATIENTS WITH NO INSURANCE COVERAGE FOR THE EQUIPMENT BEING REQUESTED. THE SUCCESS OF THIS PROGRAM IS DUE TO THE GENEROSITY OF OUR SUPPORTERS AND VENDORS WHO DONATE EQUIPMENT AND TO THE FUNDS RAISED THROUGH OUR WALK TO DEFEAT ALS PROGRAMS WHICH ALLOW US TO PURCHASE NEW ITEMS, REPAIR/REPLACE EXISTING ITEMS, AND ENSURES PROPER MAINTENANCE TO THE VARIOUS DME ITEMS IN THE LOAN CLOSET. DURING THE YEAR ENDED JANUARY 31, 2020, THE CHAPTER LOANED 567 PIECES OF EQUIPMENT TO 189 PATIENTS. PATIENT FINANCIAL GRANT PROGRAMS SUPPORTED 55 PATIENTS FOR CAREGIVER RELIEF, NUTRITION, DME ITEMS NOT AVAILABLE IN CHAPTER LOAN CLOSET, MEDICAL TRANSPORTATION TO/FROM MEDICAL APPOINTMENTS, AND MEDICAL COPAYS.

AWARENESS EVENTS: EVENTS SPONSORED BY THE CHAPTER INCLUDE THE WALK TO DEFEAT ALS, BOB KRAVITZ GOLF OUTING, CRUISIN' FOR A CURE CAR SHOW, ALS RESEARCH UPDATE, MAY ALS AWARENESS MONTH, AND MISSION CONNECTED SOCIAL MEDIA. NOVEMBER NATIONAL CAREGIVERS' MONTH ACTIVITIES SERVED AS OPPORTUNITIES TO BRING HOPE AND COMMUNITY TO PEOPLE WITH ALS AND THEIR FAMILIES. BY COMING TOGETHER AT AWARENESS EVENTS, PEOPLE WITH ALS AND THEIR FAMILIES, AS WELL AS THOSE WHO HAVE LOST A LOVED ONE TO ALS, FIND STRENGTH AND SUPPORT WITH ONE ANOTHER. MORE THAN 5,000 PEOPLE PARTICIPATE IN THESE EFFORTS TO RAISE THE PROFILE OF THE CHAPTER AND ENGAGE COMMUNITY AWARENESS OF THE SERVICES AND RESOURCES AVAILABLE FROM THE INDIANA CHAPTER.

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