Organizations Filed Purposes:
LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE EMPOWERING PEOPLE WITH LOU GEHRIGS DISEASE TO LIVE FULLER LIVES.
THE CARE SERVICES PROGRAM BEGINS WITH CARE SERVICE COORDINATORS WHO CONDUCT IN-HOME VISITS TO ASSESS THE NEEDS OF PERSONS WITH ALS, PALS AND THEIR FAMILIES, SERVE AS AN ADVOCATE BETWEEN PALS ARE FAMILIAR WITH ALL AVAILABLE RESOURCES THE CARE SERVICES PROGRAM ALSO PROVIDES A DURABLE MEDICAL EQUIPMENT AND ASSISTIVE TECHNOLOGY LOAN CLOSET SUPPORT GROUP MEETINGS FOR PALS AND CAREGIVERS, RESPITE CARE FOR CAREGIVERS, A MULTI DISCIPLINARY CLINIC AT OUR LADY OF LOURDES REGIONAL MEDICAL CENTER IN LAFAYETTE AND A TRANSPOTATION PROGRAM TO TRANSPORT PALS TO THAT CLINIC
THE EDUCATION & AWARENESS PROGRAM MAINTAINS A LIBRARY INCLUDING BOOKS, VIDEOS, AND OTHER RESOURCES RELATED TO LIVING WITH ALS, SENDS MONTHLY E-NEWSLETTERS TO THE ALS COMMUNITY AND SUPPORTERS WITH INFORMATION ON RESEARCH EFFORTS, ADVOCAY ACTIVITIES AND CHAPTER NEWS, HOST ALS EDUCATION SYMPOSIUMS IN THREE CITIES TO EDUCATE PATIENTS, CAREGIVERS AND THE MEDICAL COMMUNITY, LEADS INSERVICES TO TRAIN HEALTH CARE PROFESSIONALS, HOLDS ANNUAL LOU GEHRIG ESSAY CONTESTS FOR 8TH GRADERS HOST THE WALK TO DEFEAT ALS IN 6 CITIES, HOST ANNUAL GALA, SCHEDULES STRIKE OUT ALS AWARENESS NIGHTS WITH LOCAL MINOR LEAGUE BASEBALL TEAMS AND PARTNERS WITH THE MEDIA TO SHARE STORIES OF PEOPLE LIVING WITH ALS
THE ADVOCACY PROGRAMS EFFORTS ON BOTH STATE AND NATIONAL LEVELS HAVE RESULTED IN PUBLIC POLICY CHANGES THE ADDRESS NEEDS OF ALS PATIENTS SUCH AS DECREASED WAITING LISTS FOR SERVICES AND AID AS WELL AS THE DEVELOPMENT OF THE NATIONAL ALS REGISTRY THE ALS ASSOCIATION LA-MS CHAPTER HOST AN ALS AWARENESS DAY AT THE STATE CAPITOLS IN BOTH BATON ROUGE AND JACKSON EACH YEAR.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Paula Shamsie | EXECUTIVE DIRECTOR | 40 | $85,000 |
| John Piland | Treasurer | 1 | $0 |
| Will Bryant | Vice President | 1 | $0 |
| Claire Drummond | President | 1 | $0 |
| Pat Mitchell | Director | 1 | $0 |
| Flynn Foster | Director | 1 | $0 |
| Ricky Decastro | Director | 1 | $0 |
| Mickey Broussard | Director | 1 | $0 |
| Stephen Brierre | Director | 1 | $0 |
| Laura Boudreaux | Director | 1 | $0 |
| Paul Bode | Director | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202032699349301438_public.xml