Organizations Filed Purposes:
THE PRIMARY PURPOSE OF THE ORGANIZATION IS TO PROVIDE COMPREHENSIVE CLINICAL CARE TO PERSONS AFFECTED BY INHERITED BLOOD DISORDERS AND TO ADMINISTER PROGRAMS SUPPORTED BY FEDERAL GRANTS AWARDED BY THE DEPARTMENT OF HEALTH AND HUMAN SERVICES HEALTH RESOURCES SERVICES ADMINISTRATION (HRSA) THROUGH THEIR MATERNAL AND CHILD HEALTH BUREAU (MCHB) AND BY THE CENTERS OF DISEASE CONTROL (CDC) PASSED THROUGH BY HRSAS REGION IX PROGRAM.
THE CENTER PROVIDES CARE TO PERSONS AFFECTED BY INHERITED BLOOD DISORDERS REGARDLESS OF THE INDIVIDUALS ABILITY TO PAY. THIS CENTER UTLIZES A COMPREHENSIVE CARE MODEL FOLLOWED BY HEMOPHILIA TREATMENT CENTERS (HTCS) ACROSS THE COUNTRY FOR OVER THIRTY YEARS. THE MODEL INVOLVES AN INTERDISCIPLINARY APPROACH TO THE CARE OF THE PATIENT. WHEN A PATIENT COMES IN FOR A COMPREHENSIVE VISIT THEY ARE SEEN BY A CLINICAL TEAM CONSISTING OF A HEMATOLOGIST, NURSE PRACTITIONER, (OR PHYSICIAN ASSISTANT) A NURSE, A PHYSICAL THERAPIST (IF NECESSARY) AND A SOCIAL WORKER. THE CENTER IS WELL SUITED TO CARRY OUT THIS FUNCTION GIVEN THAT ITS CORE TEAM HAS BEEN INVOLVED IN THE CARE AND MANAGEMENT OF THESE PATIENTS FOR OVER TWENTY YEARS.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Daisy Cortes | MEDICAL DIRE | 40 | $160,739 |
| Amber Federizo | MEDICAL DIRE | 40 | $151,363 |
| Jerry Fox | PRESIDENT/ED | 40 | $143,077 |
| Alison Bartko | DIRECTOR OF | 40 | $129,882 |
| Rebecca Berkowitz | PROGRAM DIRE | 40 | $108,347 |
| Julie Usgaard | SECRETARY | 1 | $0 |
| Stuart Richey | DIRECTOR | 1 | $0 |
| Kelli Walters Perlongo | DIRECTOR | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202013289349300221_public.xml