Organizations Filed Purposes:
TO RAISE THE AWARENESS OF DUCHENNE MUSCULAR DYSTROPHY AFFECTING 1 IN 3500 MALE BIRTHS AS AN X-LINKED HEREDITARY DISEASE THAT CAUSES DEGENERATION AND NECROSIS OF SKELETAL MUSCLE FIBRES AND RAISE FUNDS TO ESTABLISH AN ENDOWMENT AT THE MONROE CARELL JR CHILDRENS HOSPTIAL AT VANDERBILT IN NASHVILLE, TN TO FUND RESEARCH FOR A CURE OF SUCH DISEASE IN MALE BIRTHS.
FROM THE ENTITY'S INHOUSE FUNDRAISING EFFORTS, A RESEARCH FUND GRANT OF $100,000 WAS GIVEN TO CURE DUCHENNE CARES, WHICH AIMS TO IMPROVE AND EXTEND THE LIVES OF INDIVIDUALS LIVING WITH DUCHENNE BY PROVIDING EDUCATION, RESOURCES, AND COMMUNITY BUILDING OPPORTUNITIES.
FROM THE ENTITY'S INHOUSE FUNDRAISING EFFORTS, A RESEARCH FUND GRANT OF $50,000 WAS GIVEN TO SOLID BIOSCIENCES, LLC, A CAMBRIDGE, MASSCHUSETTS COMPANY, TO FURTHER RESEARCH FOR DEVELOPING A CURE OF DUCHENNES DISEASE THROUGH GENE THERAPY STUDIES AND RESEARCH.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
Name | Title | Hours Per Week | Total Salary |
Jeb Beasley | Director | 0 | $0 |
Spook Spann | Director | 0 | $0 |
Joe Deweese | Director | 0 | $0 |
Larry Gilbow | Director | 0 | $0 |
Wendell Brown | Director | 0 | $0 |
Jamie Mullican | Director | 0 | $0 |
Sonya Marlin | Vice President | 0 | $0 |
Terry Marlin | President | 0 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202013219349321666_public.xml