Organizations Filed Purposes:
TO BUILD AWARENESS OF THE DISEASE OF HYPOPHOSPHATASIA BY PROVIDING EDUCATIONAL MATERIALS, A SUPPORT NETWORK, A SHARING OF INFORMATION REGARDING RESEARCH AND TREATMENT OPTIONS TO PEOPLE DIAGNOSED WITH HYPOPHOSPHATASIA, THEIR FAMILIES, AND TO THE TREATING DOCTORS.
EDUCATION & RESOURCE PROGRAM - THE ORGANIZATION PROVIDES FREE EDUCATION & RESOURCES TO THOSE AFFECTED BY THE DISEASE.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Michelle Labruno | TREASURER | 1 | $0 |
| Deborah Fowler | PRESIDENT | 1 | $0 |
| Heidi Floyd | SECRETARY | 1 | $0 |
| Karen Carolonza | VICE PRESIDE | 1 | $0 |
| Dr Brenda Ziegler | DIRECTOR | 1 | $0 |
| Adam Grenker Esq | DIRECTOR | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202012479349300711_public.xml