Organizations Filed Purposes:
TO EDUCATE, EMPOWER AND LIFT THE SPIRITS OF CHILDREN SUFFERING WITH THE DEVASTATING EFFECTS OF CANCER THROUGHOUT THE UNITED STATES. FOR ALL OF THE MIRACLES THAT MODERN MEDICINE CAN PERFORM, THE HEALING NEEDS OF THE HEART, MIND AND SPIRIT REMAIN CENTRAL TO THE FIGHT AGAINST CANCER. CHILDHOOD LEUKEMIA FOUNDATION PROUDLY PROMOTES PATIENT EDUCATION, ADVOCACY, SELF-ESTEEM AND MOST OF ALL SMILES TO CHILDREN LIVING WITH CANCER SINCE 1992. CHILDHOOD LEUKEMIA FOUNDATION HAS ESTABLISHED A NETWORK OF OVER 250 HOSPITALS THROUGHOUT THE U.S. TO SUPPORT AND EMPOWER OVER 230,000 YOUNG CANCER PATIENTS (NEWBORN TO AGE TWENTY-ONE) THROUGH OUR VARIOUS PROGRAMS.
TO EDUCATE, EMPOWER AND LIFT THE SPIRITS OF CHILDREN SUFFERING WITH THE DEVASTATING EFFECTS OF CANCER THROUGHOUT THE UNITED STATES.
KEEPING KIDS CONNECTED IPADS:THE KEEPING KIDS CONNECTED IPAD PROGRAM ALLOWS YOUNG CANCER PATIENTS TO REMAIN CONNECTED TO THEIR FAMILY, FRIENDS AND SCHOOLWORK WHILE ACTIVELY RECEIVING CANCER TREATMENT. FACETIME, EMAIL AND TEXTS PROVIDE EMOTIONAL AND PSYCHOLOGICAL SUPPORT TO HOSPITALIZED PATIENTS. IPADS ALSO OFFER AGE APPROPRIATE DISTRACTIONS TO HELP CHILDREN COPE WITH THE ANXIETY AND BOREDOM ASSOCIATED WITH CANCER TREATMENT AND HOSPITAL CONFINEMENT. PLAYING A GAME, OR ENGAGING IN ARTISTIC OR MUSICAL ACTIVITY, CAN RELAX A CHILD AND REDUCE THE PERCEIVED TRAUMA. OVERALL, THE IPAD IS A WELCOMED TOOL FOR THESE PATIENTS TO STAY CONNECTED TO THEIR LIVES WHILE IN THE HOSPITAL.
HOPE BINDERS: HOPE BINDERS IMPROVE A PATIENT'S LEVEL OF HEALTH LITERACY. PEDIATRIC ONCOLOGY PATIENTS AND THEIR FAMILIES ARE OVERWHELMED WITH THE AMOUNT OF MEDICAL AND INSURANCE INFORMATION ASSOCIATED WITH A CHRONIC ILLNESS SUCH AS CANCER. OUR HOPE BINDER HAS 12 SECTIONS TO REFERENCE AND RECORD MEDICAL INFORMATION REGARDING THE CHILD'S TREATMENT. ADDITIONALLY, THE BINDERS INCLUDE HELPFUL HINTS AND VALUABLE RESOURCES. WE HAVE DISTRIBUTED OVER 20,000 HOPE BINDERS TO NEWLY DIAGNOSED PATIENTS WITHIN A NETWORK OF OVER 250 HOSPITALS THROUGHOUT THE U.S.
HUGS U WEAR:OUR HUGS U WEAR PROGRAM OFFERS HUMAN HAIR WIGS TO YOUNG CANCER PATIENTS WHO HAVE LOST THEIR OWN HAIR DUE TO CHEMOTHERAPY TREATMENTS. THE HUG U WEAR IS A CUSTOM-MADE, HUMAN HAIR WIG SEWN INTO A LIGHTWEIGHT CAP. IT COMES WITH A DETACHABLE HAT. THE CHILD CAN CHOOSE FROM SEVERAL STYLES TO HELP DEAL WITH THE STRESS AND EMBARASSMENT OF HAIR LOSS. HUGS U WEAR PROMOTES A POSITIVE SELF-IMAGE AND EASE THE TRANSITION BACK TO NORMAL LIFE. WE HAVE PROVIDED OVER 6,000 HUGS U WEAR TO CHILDREN IN NEED THROUGHOUT THE U.S.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Barbara Reid-Haramis | EXECUTIVE DIRECTOR | 40 | $181,365 |
| Barbara Estelle | CHIEF OPERATING OFFICER | 40 | $115,749 |
| David Werrell | INDIVIDUAL TRUSTEE | 2 | $0 |
| Diane Russo | INDIVIDUAL TRUSTEE | 2 | $0 |
| Lou Russo | INDIVIDUAL TRUSTEE | 2 | $0 |
| Dr Eric Frankenfeld | INDIVIDUAL TRUSTEE | 2 | $0 |
| Albert Mcevoy Iii | INDIVIDUAL TRUSTEE | 2 | $0 |
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