Organizations Filed Purposes:
THE MULTIPLE SCLEROSIS ASSOCIATION OF AMERICA, INC. (THE ASSOCIATION) IS A LEADING RESOURCE FOR THE ENTIRE MS COMMUNITY, IMPROVING LIVES TODAY THROUGH VITAL SERVICES AND SUPPORT.
THE ASSOC. IMPROVES LIVES TODAY FOR THE ENTIRE MS COMMUNITY THROUGH VITAL SERVICES AND SUPPORT.
1- PATIENT SERVICES: THE ASSOCIATION'S MRI ACCESS FUND PROVIDES ASSISTANCE FOR MS PATIENTS OR INDIVIDUALS WHO HAVE SUSPECTED MS TO OBTAIN AN MRI SCAN FOR THE PURPOSE OF PROVIDING A DIAGNOSIS OR TRACKING PROGRESSION. THE PROGRAM SERVES INDIVIDUALS WHOSE INCOME IS UNDER 300% OF THE FEDERAL POVERTY GUIDELINES AND ARE OTHERWISE UNABLE DUE TO BEING UNINSURED OR UNDER-INSURED TO PAY FOR AN MRI ON THEIR OWN. DURING FY20, MSAA APPROVED MORE THAN 1,000 ELIGIBLE INDIVIDUALS FOR MRI SCANS WITH A VALUE IN EXCESS OF $463,500. (CONTINUE IN SCHEDULE O)THE ASSOCIATION'S COOLING AND EQUIPMENT DISTRIBUTION PROGRAM HELPS INDIVIDUALS WITH MS OBTAIN THE EQUIPMENT THAT THEY NEED IN ORDER TO BEST MANAGE THEIR MS. THE PROGRAM PROVIDES SPECIAL COOLING APPAREL WHICH HELPS ALLEVIATE HEAT SENSITIVITY ISSUES FOR MS PATIENTS, AS WELL AS DURABLE MEDICAL AND SAFETY EQUIPMENT AT NO CHARGE TO MS PATIENTS THROUGHOUT THE COUNTRY. DURING FY20 THE ASSOCIATION DELIVERED NEARLY 4,000 PIECES OF SAFETY, MOBILITY, AND SYMPTOM-MANAGEMENT PRODUCTS TO INDIVIDUALS AFFECTED BY MS WITH A VALUE IN EXCESS OF $458,500. ALSO, AS NOTED ABOVE, MSAA ADDED COVID-19 FINANCIAL HARDSHIP WAIVERS TO THESE PROGRAMS TO HELP SUPPORT FAMILIES DEVISTATED BY THE PANDEMIC.
2- PUBLIC EDUCATION, INFORMATION & REFERRAL: THE ASSOCIATION'S NATIONAL EDUCATIONAL PROGRAMS DELIVER HIGH-QUALITY, INFORMATIVE PROGRAMMING TO MS PATIENTS, CARE PARTNERS AND HEALTHCARE PROFESSIONALS NATIONWIDE. THESE PROGRAMS COVER A VARIETY OF TOPICS ALL AIMED AT IMPROVING HEALTH OUTCOMES FOR MS PATIENTS. THE ASSOCIATION PARTNERS WITH A NATIONAL NETWORK OF HEALTHCARE PROFESSIONALS TO PRESENT PROGRAMS OF SCIENTIFIC AND EDUCATIONAL VALUE. THESE IN-PERSON AND VIRTUAL EDUCATIONAL PROGRAMS COVER A WIDE BREADTH OF TOPICS, RANGING FROM ADVANCES IN DISEASE RESEARCH AND SYMPTOM MANAGEMENT, TO NUTRITION AND WELLNESS ACTIVITIES AS WELL AS PROGRAMS TAILORED TO MEN/WOMEN LIVING WITH MS AND PROGRAMS CURATED FOR UNDERSERVED POPULATIONS. (CONTINUE IN SCHEDULE O)THE ASSOCIATION ALSO REGULARLY OFFERS IN-PERSON PROGRAMMING FOCUSED ON SCIENTIFIC UPDATES IN DISEASE MANAGEMENT AND BEST PRACTICES IN TREATMENT PROTOCOL FOR HEALTH CARE PROFESSIONALS THAT TREAT THOSE LIVING WITH MS, SUCH AS NEUROLOGISTS AND NURSES. IN 2019, MSAA ALSO CONVENED THE MS AFRICAN-AMERICAN ADVISORY BOARD, COMPRISED OF MS HEALTHCARE PROFESSIONALS, PATIENTS AND CARE PARTNERS, TO DEVELOP A FIVE YEAR PLAN OF INITIATIVES TO SERVE THE AFRICAN-AMERICAN MS PATIENT COMMUNITY. ADDITIONALLY, MSAA CONVENED A SERIES OF ROUND TABLE DISCUSSIONS WITH LEADING MS NEUROLOGISTS AND PAYERS TO EXPLORE HOW THE HEALTHCARE SYSTEM COULD BETTER SERVE THE MS COMMUNITY AND IDENTIFY COMMON INTERESTS. THE FINDINGS FROM BOTH OF THESE INITIATIVES ARE BEING DEVELOPED AS WHITE PAPERS AND WILL BE BROADLY DISSEMINATED WITHIN THE MS COMMUNITY.THROUGH PUBLICATIONS, VIDEOS, PODCASTS, THE ASSOCIATION'S WEBSITE, A HELPLINE, AND IN -PERSON EDUCATIONAL PROGRAMS, AND WEBINARS, THE ASSOCIATION PROVIDES THE MS COMMUNITY AND THE GENERAL PUBLIC VITAL INFORMATION ABOUT THE DISEASE, THE MANAGEMENT OF SYMPTOMS AND BREAKTHROUGHS IN RESEARCH. THE ASSOCIATION PUBLISHES A NATIONAL MAGAZINE "THE MOTIVATOR" DISTRIBUTED BIANNUALLY WITH A CIRCULATION OF MORE THAN 92,000. THE MAGAZINE IS ALSOAVAILABLE AS A DIGITAL EDITION. INDIVIDUAL CLIENT NEEDS ARE MET THROUGH THE ASSOCIATION'S NATIONAL TOLL-FREE HELPLINE. OUR TRAINED SOCIAL WORKERS RESPONDED TO NEARLY 14,000 CLIENT INQUIRIES IN THE PAST YEAR AND PROVIDED THESE CLIENTS WITH CONTACTS TO APPROPRIATE SERVICES THROUGHOUT THE NATION. THE ASSOCIATION'S WEBSITE HAD MORE THAN 975,000 SESSIONS DURING THE YEAR ENDED JUNE 30, 2020. THE ASSOCIATION OFFERS A MOBILE PHONE APPLICATION TO ASSIST ITS CLIENTS IN MONITORING, TRACKING AND MANAGING THEIR MS AS WELL AS SHARINGE DATA WITH THEIR PHYSICIAN. THE ASSOCIATION EMPLOYS VARIOUS DIGITAL TACTICS TO COMMUNICATE WITH ITS CONSTITUENTS. THE ASSOCIATION IS ACTIVE ON 6 DIFFERENT SOCIAL MEDIA PLATFORMS. THE ASSOCIATION ALSO HOSTS A BLOG, OFFERS AN ONLINE PEER-TO-PEER COMMUNITY AND ANSWERS QUESTIONS THROUGH ITS MS QUESTIONS EMAIL OPTION AND WEBSITE CHAT FEATURE. THE ASSOCIATION RECEIVED A GOOGLE GRANT VALUED AT $129,000 IN FY20. THIS ALLOWED THE ASSOCIATION TO PROMOTE THE ORGANIZATION'S PROGRAMS AND SERVICES VIA KEYWORDS THROUGH GOOGLE'S SEARCH ENGINE IN AN EFFORT TO ASSIST INDIVIDUALS SEARCHING FOR INFORMATION ONLINE RELATED TO MS.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Gina R Murdoch | PRESIDENT & CEO | 37.5 | $241,915 |
| Erich Fasnacht | VP OF DEVELOPMENT | 37.5 | $143,141 |
| Andrea Griffin | VP OF COMMUNICATIONS & MAK | 37.5 | $116,992 |
| Amanda Montague | VP OF ED & HEALTHCARE RELA | 37.5 | $111,785 |
| Peter Damiri | VP OF PROGRAMS & SERVICES | 37.5 | $107,154 |
| Michael Lubben | DIRECTOR | 1 | $0 |
| Audrey Allsopp | DIRECTOR | 1 | $0 |
| Ann Baird Bishop | DIRECTOR | 1 | $0 |
| Alexandra Von Plato | DIRECTOR | 1 | $0 |
| Paula Nitto | DIRECTOR | 1 | $0 |
| Wendy B Scott | DIRECTOR | 1 | $0 |
| Eric K Bossard | DIRECTOR | 1 | $0 |
| Barry A Singer Md | DIRECTOR | 1 | $0 |
| Ira Levee | SECRETARY | 1 | $0 |
| David Herzog | TREASURER | 1 | $0 |
| Jennifer Schwartz Esquire | VICE CHAIRPERSON | 1 | $0 |
| Monica Derbes Gibson Esquire | CHAIRPERSON (TO 03/2020) | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202013109349302791_public.xml