Organizations Filed Purposes:
TO EDUCATE AND INCREASE AWARENESS REGARDING THE 22Q11.2 DELETION SYNDROME, ASSIST CLINICAL CARE CENTERS THAT PROVIDE SERVICES TO INDIVIDUALS AFFECTED BY THIS SYNDROME, AND PROVIDE FAMILY SUPPORT AND A HOTLINE FOR FAMILIES WITH MEMBERS AFFECTED BY THE SYNDROME.
FINANCIAL SUPPORT FOR MEDICAL CONFERENCES AND AWARENESS BOOTHS AT KEY VENUES FOR MEDICAL PROFESSIONALS. BIENNIAL CONFERENCE HELD IN CONJUNCTION WITH CHOP AND OTHER SPONSORS FOR AWARENESS AND EDUCATION OF THE SYNDROME. FINANCIAL SUPPORT FOR RESEARCH RELATED TO CHROMOSOME 22Q11.2 DIFFERENCES.
ORGANIZATION OF ANNUAL 22Q AT THE ZOO! WORLDWIDE AWARENESS DAY.
RAISING AWARENESS OF THE SYNDROME AND DISTRIBUTION OF RESOURCES. DISTRIBUTION OF "PARENT BINDER" FOR NEWLY DIAGNOSED FAMILIES WITH INFORMATION AND RESOURCES. RAISING AWARENESS OF THE 22Q11.2 DELETION SYNDROME THROUGH MAILINGS, ANNUAL CALENDAR CAMPAIGN, NEWSLETTERS, MAGNETS AND BRACELETS. MAINTENANCE OF A "HOTLINE" THROUGH EMAIL/WEBSITE/TOLL-FREE NUMBER FOR PARENTS AND MEDICAL PROFESSIONALS TO OBTAIN INFORMATION, REFERRALS AND OTHER SUPPORT.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Melissa Maisenbacher Ms Cgc | SECRETARY | 1 | $0 |
| Suzanne Dicamillo | TREASURER | 1 | $0 |
| Missy Disibio | VICE-CHAIRPERSON | 1 | $0 |
| Marc Weinberg Esq | CHAIRPERSON | 1 | $0 |
| Elizabeth Vinhal | TRUSTEE | 1 | $0 |
| Debbie Deloach | TRUSTEE | 1 | $0 |
| Anne Bassett Md | MEDICAL DIRECTOR | 1 | $0 |
| Paula Uccello | TRUSTEE | 1 | $0 |
| Nicole Mark | TRUSTEE | 1 | $0 |
| Donna Cutler-Landsman Ms | TRUSTEE | 1 | $0 |
| Melinda Taylor | TRUSTEE | 1 | $0 |
| Edward Moss Phd | TRUSTEE | 1 | $0 |
| Christine Moriconi Psyd Rnc | TRUSTEE | 1 | $0 |
| Donna Mcdonald-Mcginn Ms Cgc | TRUSTEE | 1 | $0 |
| Arora Manish | TRUSTEE | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202003219349311285_public.xml