Organizations Filed Purposes:
The agency assists individuals and families affected by sickle cell disease through education, support, advocacy and other programs that improve the quality of life.
New Born Screening Grant - program to improve the care and reduce rates of individuals with SCD who are "lost to follow-up" by supporting efforts of sickle cell disease education and service coordination. (Aprox 400 served)
Chronic Disease and Diabetes Self Management - Workshops are offered to increase health outcomes of individuals with sickle cell disease and other health conditions. The program addresses overall wellness (Aprox 200 served)
Novartis-grant to support the SCANJ Statewide Sickle Cell Symposium; an educational seminar to increase the sickle cell disease knowledge level of individuals living with sickle cell disease, medical professionals and the general community.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Mary Bently Lamar | Executive Director | 50 | $52,244 |
| Darlene Young | Key Employee | 40 | $42,993 |
| Sakiyyah Burwell-Darden | Key Employee | 40 | $34,973 |
| Joy Elaine Daley | Board Member | 1 | $0 |
| Deborah Wilson | Board Member | 1 | $0 |
| Vallerie Cleveland | Treasurer | 4 | $0 |
| Beverly Lucas | Secretary | 4 | $0 |
| Ansley W Lamar | President | 4 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202041649349300739_public.xml