Organizations Filed Purposes:
HISTIOCYTOSIS ASSOCIATION, INC. IS DEDICATED TO RAISING AWARENESS ABOUT HISTIOCYTIC DISORDERS, PROVIDING EDUCATION AND EMOTIONAL SUPPORT, AND FUNDING RESEARCH LEADING TO BETTER TREATMENTS AND A CURE.
EDUCATION AND OUTREACH: THE HISTIOCYTOSIS ASSOCIATION PROVIDES EDUCATIONAL INFORMATION AND OPPORTUNITIES TO PATIENTS AND THEIR FAMILIES AS WELL AS TO THE MEDICAL COMMUNITY THROUGH OUR ONLINE PRESENCE AT WWW.HISTIO.ORG, EDUCATIONAL VIDEOS, PRINTED MATERIALS AND ECOMMUNICATIONS. WE PROVIDE EMOTIONAL SUPPORT WITH OUR CIRCLE OF FRIENDS PROGRAM, SOCIAL MEDIA ACTIVITY, TELEPHONE-BASED HELPLINE AND HISTIO WARRIORS DIRECTORY WHICH CONNECTS PATIENTS AND FAMILIES IN A PRIVATE AND SECURE SETTING. THROUGH OUR PHYSICIAN DIRECTORY, PATIENTS AND DOCTORS ALIKE CAN FIND EXPERIENCED PHYSICIANS IN THEIR AREA. WE ADVOCATE FOR PATIENTS WITH HISTIOCYTIC DISORDERS THROUGHOUT THE YEAR, PARTICULARLY DURING SEPTEMBER HISTIOCYTOSIS AWARENESS MONTH, TO RAISE FUNDS AND AWARENESS ABOUT THESE RARE DISORDERS.
RESEARCH INITIATIVES: WE FUND THE VERY BEST BASIC SCIENCE RESEARCH BEING CONDUCTED WORLDWIDE AS IDENTIFIED THROUGH A COMPETITIVE EVALUATION PROCESS; THE RESULTS OF THIS FUNDING CONTINUE TO PAVE THE PATH TO A CURE. WE FUND CLINICAL STUDIES THAT RESULT IN IDENTIFYING THE BEST POSSIBLE TREATMENTS FOR HISTIOCYTIC DISORDERS; THIS PROVIDES IMMEDIATE AID TO PATIENTS BATTLING THESE DISEASES. AND WE DIRECTLY FACILITATE RESEARCH BY MANAGING THE HISTIOCYTE SOCIETY, THE ONLY PROFESSIONAL MEDICAL ORGANIZATION SPECIFICALLY DEDICATED TO THE RESEARCH AND TREATMENT OF HISTIOCYTIC DISORDERS; THIS UNIQUE RELATIONSHIP PROVIDES US WITH UNPARALLELED ACCESS TO THE LATEST ADVANCEMENTS AND INFORMATION IN THE SCIENTIFIC COMMUNITY, FROM WHICH ALL PATIENTS CAN BENEFIT.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Jeffrey Toughill | PRESIDENT AND CEO | 40 | $83,797 |
| Deanna Fournier-Kahn | BOARD MEMBER | 1 | $0 |
| Bradley Comp | BOARD MEMBER | 1 | $0 |
| Chad Rubin | SECRETARY | 1 | $0 |
| Kimo Stine | BOARD MEMBER | 1 | $0 |
| Tracy Brown | BOARD MEMBER | 1 | $0 |
| Bryce Warren | VICE CHAIRMAN | 1 | $0 |
| Robert List | TREASURER | 1 | $0 |
| Christine Shipley | BOARD MEMBER | 1 | $0 |
| James Hassan | CHAIRMAN | 1 | $0 |
| Stephan Ladisch | BOARD MEMBER | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202003189349309855_public.xml