Organizations Filed Purposes:
CARES FOUNDATION IS A NONPROFIT ORGANIZATION COMMITTED TO IMPROVING THE LIVES OF FAMILIES AND INDIVIDUALS AFFECTED BY CONGENITAL ADRENAL HYPERPLASIA (CAH) THROUGH PROACTIVELY ADVANCING RESEARCH FOR A BETTER UNDERSTANDING OF CAH, BETTER TREATMENTS AND A CURE; EDUCATING THE PUBLIC AND HEALTHCARE PROFESSIONALS ABOUT ALL FORMS OF CAH; ADVOCATING FOR UNIVERSAL NEWBORN SCREENING; IMMEDIATE, APPROPRIATE EMERGENCY MEDICAL TREATMENT; AND COMPREHENSIVE LIFELONG CARE; AS WELL AS SUPPORT SERVICES AND RESOURCES VITAL TO THE CAH COMMUNITY WORLDWIDE.
FAMILY SUPPORT & EDUCATION PROVIDES EDUCATIONAL MATERIALS AND INFORMATION FOR LIVING WITH THE DAILY CHALLENGES OF CONGENITAL ADRENAL HYPERPLASIA (CAH). OUR TOOLS HELP THOSE AFFECTED BY CAH TO BETTER CARE AND ADVOCATE FOR THEMSELVES AND THEIR FAMILIES. OUR CONFERENCES ENABLE OUR COMMUNITY TO HAVE DIRECT ACCESS TO THE TOP EXPERTS IN THE COUNTRY AND PROVIDE OPPORTUNITES FOR CONNECTING WITH OTHERS.
WARMLINE SUPPORT PROVIDES INDIVIDUALS AND PARENTS OF CHILDREN WITH CAH A ONE-ON-ONE SOURCE OF INFORMATION AND SUPPORT, WHICH INCLUDES PHYSICIAN AND RESOURCE REFERRALS, VIA TELEPHONE, EMAIL AND MAIL.
Support of Center of Excellence for CAH: This pilot CARES-designated Comprehensive Care Center provides a multi-disciplinary approach to treatment of the CAH patient throughout the lifecycle.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Valentina Tudor | Trustee | 5 | $0 |
| Brain Stair | Trustee | 5 | $0 |
| Alan Macy | Trustee | 5 | $0 |
| Keysha Berry | Trustee | 5 | $0 |
| Maria Maebius | Trustee | 5 | $0 |
| Katherine Fowler | Secretary | 10 | $0 |
| Alexandra Dubois | Vice Chair | 10 | $0 |
| Lesley Holroyd | Trustee | 5 | $0 |
| Carlos Dasilva | Treasurer | 10 | $0 |
| Michele Bacus | Trustee | 5 | $0 |
| Louise Fleming Phd Rn | Board Chair | 10 | $0 |
| Timothy Roberts | Trustee | 5 | $0 |
| Chad Lapp | Trustee | 5 | $0 |
| Karen Bogaard | Past President | 10 | $0 |
| Stacey Shackley | Trustee | 5 | $0 |
| Jessica Margolies | Trustee | 5 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202121259349300927_public.xml