Organizations Filed Purposes:
TO EDUCATE, SUPPORT AND PROVIDE ADVOCACY FOR THOSE AFFECTED BY GALACTOSEMIA.
TO SPREAD AWARENESS OF GALACTOSEMIA; TO PROVIDE SUPPORT FOR PARENTS OF CHILDREN WITH GALACTOSEMIA THROUGH EDUCATION AND FUNDING RESEARCH.
PROVIDED SUPPORT TO INDIVIDUALS WITH GALACTOSEMIA AND SPREAD AWARENESS BY PUBLISHING TWO NEWSLETTERS WORLDWIDE, SETTING UP A NATIONWIDE WEBSITE DISCUSSION FORUM, THROUGH TELEPHONE SUPPORT, AND A BIENNIAL CONFERENCE.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Jodi Solari | COMMUNICATIONS LEAD | 2 | $0 |
| Brittany Cudzilo | OUTREACH LEAD | 2 | $0 |
| Layne Long | CONFERENCE CHAIR | 2 | $0 |
| Scott Saylor | VICE PRESIDENT | 2 | $0 |
| Cari Miller | SECRETARY | 2 | $0 |
| Nicole Casale | TREASURER | 5 | $0 |
| Kellie Wilcox | PRESIDENT | 10 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202033189349305943_public.xml