INTERNATIONAL WALDENSTROMS MACROGLOBULINEMIA FOUNDATION INC
PO BOX 2840, BINGHAMTON, NY 13902 www.iwmf.com

Total Revenue
$2,462,792
Total Expenses
$2,838,627
Net Assets
$3,330,688

Organizations Filed Purposes: MISSION OBJECTIVES: (A) OFFER MUTUAL SUPPORT AND ENCOURAGEMENT TO THE WALDENSTROM'S MACROGLOBULINEMIA COMMUNITY AND OTHERS WITH AN INTEREST IN THE DISEASE, (B) TO PROVIDE INFORMATION AND EDUCATIONAL PROGRAMS THAT ADDRESS PATIENTS AND CAREGIVERS' CONCERNS AND (C) TO PROVIDE AND SUPPORT RESEARCH LEADING TO BETTER TREATMENTS AND ULTIMATELY A CURE.

OUR VISION IS TO SUPPORT EVERYONE AFFECTED BY WALDENSTROM'S MACROGLOBULINEMIA WHILE ADVANCING THE SEARCH FOR A CURE. SUPPORT IS GIVEN THROUGH PUBLICATIONS, HOT LINE SUPPORT, AND AN EDUCATIONAL FORUM. THE ORGANIZATION ALSO PROVIDES RESEARCH GRANTS TO ENCOURAGE AND SUPPORT RESEARCH FOR TREATMENTS AND ULTIMATELY A CURE.

PROVIDED 24 GRANT PAYMENTS TOWARDS 11 DIFFERENT GRANTS TO FURTHER RESEARCH IN WALDENSTROM'S MACROGLOBULINEMIA DEVELOPMENT OF TARGETED THERAPIES, TARGETING THE TUMOR MICROENVIRONMENT, DEVELOPMENT OF THE ROLE OF HYPOXIA, LARGE SCALE GENOMIC AND PROTEOMIC PROFILING, FACTORS REGULATING IMMUNOGLOBULIN-PRODUCING B-CELLS, IDENTIFICATION OF GERMLINE AND SOMATIC VARIANTS ASSOCIATED WITH PREDISPOSITION OF WALDENSTROM'S MACROGLOBULINEMIA, FURTHER GENOMIC CHARACTERIZATION OF WALDENSTROM'S MACROGLOBULINEMIA, UNVEILING THE ROLE OF THE CXCR4 SOMATIC MUTATION, A CRUCIAL REGULATOR OF PATHOGENSIS AND IMPORTANT TARGET FOR THERAPY.

EDUCATIONAL FORUMS HOSTED A NATIONAL EDUCATIONAL FORUM FOR WALDENSTROM'S MACROGLOBULINEMIA PATIENTS AND PROVIDED A GRANT TO FUND PATIENT EDUCATIONAL FORUMS.

IWMF PUBLICATIONS SERVE TO EDUCATE AND SUPPORT PATIENTS AND CAREGIVERS. IWMF TORCH IS A QUARTERLY MAGAZINE WHICH COVERS THE LATEST INFORMATION ON WALDENSTROM'S MACROGLOBULINEMIA EDUCATION, RESEARCH, ACTIVITIES, AND TREATMENTS.

Executives Listed on Filing

Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing

NameTitleHours Per WeekTotal Salary
David BensonSENIOR DEVELOPMENT OFFICER40$144,692
Jennifer SilvaOPERATIONS MANAGER40$64,235
Lisa J Wise MedTRUSTEE15$0
Linda NelsonTRUSTEE15$0
Barry NelsonTRUSTEE15$0
Robert A Kyle MdTRUSTEE15$0
Shirley GanseTRUSTEE15$0
Ron BranscomeTRUSTEE15$0
Marlyn FriedlanderTRUSTEE15$0
Peter DenardisTRUSTEE20$0
Stephen Ansell Md PhdTRUSTEE15$0
Thomas H Hoffmann Md FacsaccpVICE PRESIDENT FOR RESEARC15$0
Michael SesnowitzVICE PRESIDENT FOR FUNDRAI15$0
Elena MalunisVICE PRESIDENT FOR MEMBER15$0
Beverly DocteurSECRETARY/TREASURER15$0
Carl HarringtonPRESIDENT30$0

Data for this page was sourced from XML published by IRS (public 990 form dataset) from: https://s3.amazonaws.com/irs-form-990/201902969349301880_public.xml