Organizations Filed Purposes:
EDUCATION AND SUPPORT TO PEOPLE WITH SCLERODERMA; STIMULATE AND SUPPORT RESEARCH DESIGNED TO IDENTIFY CAUSE AND CURE; ENHANCE PUBLIC AWARENESS.
THE FOUNDATION PAID AN ANNUAL ASSESSMENT AND RESTRICTED RESEARCH PLEDGE AWARD TO SCLERODERMA FOUNDATION-NATL TO BE USED TOWARD RESEARCH GRANTS AS WELL AS OTHER PROGRAMS AFFILIATED WITH THE NATIONAL OPERATIONS.
PROGRAM SERVICES INCLUDE INDIVIDUAL AND FAMILY COUNSELING, EDUCATIONAL MEETINGS, TELEPHONE HELPLINE, NEWSLETTERS, AND OTHER PATIENT EDUCATIONAL INFORMATION.
PREPARATION OF NEWSLETTER AND OTHER PATIENT EDUCATION LITERATURE
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Bruce Cowan | EXECUTIVE DIRECTOR | 40 | $74,000 |
| Frederick Shaw | Board Member | 2 | $0 |
| Carla Gage | Board Member | 2 | $0 |
| Suzy Ballantyne | Board Member | 2 | $0 |
| Marc Krieger | President | 15 | $0 |
| Mary Contadino | Board Member | 2 | $0 |
| Marilyn Sibley | Secretary | 5 | $0 |
| Amy Gietzen | Board Member | 2 | $0 |
| Estelle Randolph | BOARD MEMBER | 2 | $0 |
| Rosemary Markoff | Treasurer | 15 | $0 |
| Jeffrey Toromoreno | Board Member | 2 | $0 |
| Jonathan Schorr | BOARD MEMBER | 2 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202131349349305663_public.xml