Organizations Filed Purposes:
To expand knowledge of the rare syndrome called ROHHAD, advance treatment, discover a cure, enhance the quality of life of the ROHHAD children and ease the financial burden of families who have children suffering from ROHHAD.
RESEARCH AND MEDICAL ASSISTANCE FOR CHILDREN WITH ROHHAD
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| John Cawley | Treasurer | 2 | $0 |
| Beth Moretti | Treasurer | 2 | $0 |
| Francesca Albertelli | Chairman | 2 | $0 |
| Diana Mariner | Secretary | 2 | $0 |
| Louis Albertelli | Chairman | 2 | $0 |
| Annalisa Defalco | Director | 2 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202101309349301750_public.xml