Organizations Filed Purposes:
YBRP INC. is a parents of patients led non-profit organization. Our primary goals are: 1) To fund research to identify, understand, treat and ultimately cure those impacted by HNRNPH2 mutations. 2) To fund initatives to raise awareness and identify more individuals with HNRNPH2 mutations. 3) To connect families impacted by HNRNPH2 in order to contribute to the understanding of the disorder.
Provide funding for HNRNPH2 mutations research
Awareness - have increased exposure for foundation and HNRNPH2 genetic variations, connected with 21 families in 2020
2020 family meeting - bring together families from around the world, researchers participated and gathered data for on-going research studies.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Robert Glenn | Marketing&Comm | 8 | $0 |
| Stacy Paddon | Outreach Coord | 10 | $0 |
| Paula Tyson | Sec&Treasurer | 12 | $0 |
| Haim Farkash | Vice President | 8 | $0 |
| Trish Flanagan | President | 12 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202131379349304418_public.xml