Organizations Filed Purposes:
HNF, INC., A NON-PROFIT DEDICATED TO SUPPORTING PROJECTS THROUGH THE THERAPEUTIC RESEARCH IN ACCELERATED DISCOVERY (TRIAD)PROGRAM, A COLLABORATIVE EFFORT WITH ACADEMIA, GOVERNMENT AND INDUSTRY, TO DEVELOP TREATMENTS FOR CMT. CURRENTLY TRIAD INVOLVES MANY GROUPS THAT SPAN THE DRUG DISCOVERY, DRUG DEVELOPMENT, AND DIAGNOSTICS CONTINUUM. EDUCATION AND SUPPORT OF THE CMT COMMUNITY TO IMPROVE QUALITY OF LIFE IS ALSO A KEY COMPONENT OF HNF'S MISSION.
HNF, INC., A NON-PROFIT DEDICATED TO SUPPORTING PROJECTS THROUGH THE THERAPEUTIC RESEARCH IN ACCELERATED DISCOVERY (TRIAD) PROGRAM, A COLLABORATIVE EFFORT WITH ACADEMIA, GOVERNMENT AND INDUSTRY, TO DEVELOP TREATMENTS FOR CMT.
THERAPEUTIC RESEARCH IN ACCELERATED DISCOVERY (TRIAD) - HNF HAS BEEN A LEADER IN COLLABORATING WITH INDUSTRY ON CLINICAL TRIAL DEVELOPMENT. THE REPORTED RESULTS OF THE DRUG PXT3003, THE FIRST PIVOTAL PHASE III CLINICAL TRIAL TO TREAT CMT1A SHOWS PROMISE. OTHER INDUSTRY STAKEHOLDERS PARTNER WITH HNF IN HELPING TO DEVELOP CLINICAL TRIAL PROTOCOLS, REGULATORY INVOLVEMENT, IMPROVED CLINICAL AND PATIENT REPORTED OUTCOME MEASURES AND ENDPOINTS FOR CLINICAL TRIALS AND FOR THE RECRUITMENT OF PATIENTS THROUGH HNF'S PATIENT REGISTRY, GLOBAL REGISTRY FOR INHERITED NEUROPATHIES (GRIN). HNF'S GRIN PROPRIETARY PLATFORM COLLECTS NATURAL HISTORY AND LONGITUDINAL STUDIES FOR CHARCOT-MARIE-TOOTH (CMT) AND OTHER INHERITED NEUROPATHIES (IN). AS PART OF THE TRIAD PROGRAM, HNF CONTINUES TO COLLABORATE ON PRECLINICAL STUDIES (BOTH NOVEL DRUG COMPOUNDS AND GENE THERAPY APPROACHES) WITH RESEARCHERS AND INDUSTRY TO TRANSLATE POTENTIAL THERAPIES FOR CMT.
MOVEMENT IS MEDICINE - HNF BELIEVES THAT PHYSICAL ACTIVITY PLAYS AN ESSENTIAL ROLE IN PHYSICAL AND MENTAL WELL BEING, ESPECIALLY FOR PEOPLE AFFECTED BY DEBILITATING DISEASES LIKE CMT. THE MOVEMENT IS MEDICINE MISSION IS TO PROMOTE THE SAFE ADOPTION OF A MORE ACTIVE LIFESTYLE THROUGH EXERCISE AND NUTRITION PROGRAMS SPECIFICALLY CREATED FOR THOSE WITH DISABILITIES. HNF COLLABORATES WITH ONLY THE TOP LEADING EXPERTS TO CONDUCT EDUCATIONAL CLASSES, ENGAGING WORKSHOPS AND TRANSLATIONAL RESERACH STUDIES AT OUR ANNUAL MOVEMENT IS MEDICINE SUMMIT WHICH WAS HELD IN PHOENIX AT ABILITY360. THE SUMMIT WAS AN INTERACTIVE TWO-DAY EVENT WITH INSPIRATIONAL SPEAKERS, AWESOME INSTRUCTORS, ONE ON ONE EXERCISE SESSIONS, SURGICAL AND BRACING EVALUATIONS, AND INFORMATIONAL WORKSHOPS SPECIFICALLY CURATED BY AND FOR CMT PATIENTS.
MEDICAL OUTREACH AND EDUCATION - HNF CONTINUES TO EDUCATE HEALTH CARE PROVIDERS ON CMT AND RELATED IN AS WELL AS TO INFORM ON THE PIPELINE OF TREATMENTS FOR THEIR PATIENTS TO CONSIDER TO PARTICIPATE IN NATURAL HISTORY, LONGITUDINAL AND CLINICAL STUDIES AND TRIALS. HNF LONG-TERM PARTNERSHIPS WITH NEUROLOGY REVIEWS (NR) AND THE AMERICAN ASSOCIATION OF NEUROMUSCULAR & ELECTRODIAGNOSTIC MEDICINE (AANEM) HAVE BEEN INSTRUMENTAL IN EDUCATING NEUROLOGISTS AND OTHERS. HNF PUBLISHED MATERIALS IN THE PRESTIGIOUS NR ANNUAL RARE NEUROLOGICAL DISEASE SPECIAL REPORT AND SUPPORTED THE AANEM IN THE DEVELOPMENT OF A CONTINUING MEDICAL EDUCATION COURSE THROUGH THEIR ON-LINE TESTING PLATFORM. HNF HOSTED A CMT SYMPOSIUM AT THEIR ANNUAL MEETING. HNF CONTINUES TO BE A LEADER IN EDUCATING THE MEDICAL COMMUNITY ON THE IMPORTANCE OF RECOGNIZING, DIAGNOSING AND TREATING CMT.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Courtney Hollett | EXECUTIVE DIRECTOR | 40 | $60,000 |
| Robert Kauffman | BOARD MEMBER | 5 | $0 |
| Brooke Warren | SECRETARY | 5 | $0 |
| Deborah Newcomb | BOARD MEMBER | 5 | $0 |
| Gretchen Cappiello | BOARD MEMBER | 5 | $0 |
| Kerin Reilly | BOARD MEMBER | 5 | $0 |
| Debi Houilares | BOARD MEMBER | 5 | $0 |
| Lisa Mccarthy | BOARD MEMBER | 5 | $0 |
| Matthew Downing | CHAIRMAN | 5 | $0 |
| Kara Sprague | TREASURER | 5 | $0 |
| Joy Andal Kaye | BOARD MEMBER | 5 | $0 |
| Allison Moore | FOUNDER AND CHIEF EXECUTIV | 50 | $0 |
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public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202131339349301043_public.xml