Organizations Filed Purposes:
THE MISSION OF THE ALS ASSOCIATION GREATER NEW YORK CHAPTER (THE "ASSOCIATION") IS TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.
DISCOVER TREATMENTS & A CURE FOR ALS, & SERVE, ADVOCATE FOR, & EMPOWER PEOPLE AFFECTED BY ALS.
PATIENT SERVICES: THE ASSOCIATION PROVIDES A WIDE RANGE OF SERVICES FOR PEOPLE WITH ALS AND THEIR FAMILIES LIVING IN NEW YORK CITY, LONG ISLAND, WESTCHESTER, HUDSON VALLEY, AND NORTHERN AND CENTRAL NEW JERSEY. THE ASSOCIATION SPONSORS TEN MULTIDISCIPLINARY CLINICS IN THE REGION, MAKES LOANS OF MEDICAL EQUIPMENT AND ASSISTIVE COMMUNICATION DEVICES, HOLDS PATIENT EDUCATION SYMPOSIA AND MONTHLY SUPPORT GROUPS, CONDUCTS HOME VISITS, PROVIDES TRANSPORTATION TO QUARTERLY CLINIC APPOINTMENTS, AND OFFERS SOCIAL WORK AND REFERRAL SERVICES.
RESEARCH: THE ASSOCIATION DIRECTS THE MOST COMPREHENSIVE, GLOBAL RESEARCH PROGRAM EVER ORGANIZED TO FIND A CURE FOR ALS. SINCE THE CHAPTER'S INCEPTION, WE HAVE FUNDED APPROXIMATELY $14 MILLION IN RESEARCH EFFORTS TO SUPPORT INNOVATIVE AND DIVERSE SCIENTIFIC RESEARCH STUDIES AND CLINICAL TRIALS WORLDWIDE. THE CHAPTER IS PROUD TO SUPPORT THE MILTON SAFENOWITZ POST-DOCTORAL FELLOWSHIP PROGRAM, WHICH ENCOURAGES AND FACILITATES PROMISING YOUNG SCIENTISTS TO WORK IN THE FIELD OF ALS RESEARCH. ADDITIONALLY, THE GREATER NEW YORK CHAPTER IS A MAJOR SUPPORTER OF THE ALS-SPECIFIC RESEARCH PROGRAM AT THE NEW YORK GENOME CENTER.
PUBLIC AWARENESS AND EDUCATION: THE ASSOCIATION WORKS TO PROMOTE AWARENESS AND UNDERSTANDING OF ALL FACETS OF THE COMPLEX AND DEVASTATING DISEASE THAT IS ALS AND THE WORK OF THE ALS ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS AND SCIENTIFIC COMMUNITIES. THROUGH EXTERNAL RELATIONS, OUR WEBSITE, AND SOCIAL MEDIA, THE ASSOCIATION CONTINUALLY RAISES AWARENESS ABOUT ALS AND THE SEARCH FOR A CURE. ON AVERAGE, 15,000 VIEWERS VISIT OUR WEBSITE QUARTERLY, A VITAL SOURCE OF INFORMATION FOR THOSE BATTLING ALS AND PEOPLE LOOKING FOR THE LATEST NEWS ABOUT THE DISEASE. OUR SOCIAL MEDIA CHANNELS INCLUDING FACEBOOK, TWITTER, AND INSTAGRAM REACH NEARLY 10,000 FOLLOWERS.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Kristen Cocoman | PRESIDENT & CEO | 40 | $177,070 |
| Regina Ackley | CHIEF OPERATING OFFICER | 40 | $135,951 |
| Tracy Ali | CHIEF CARE SERVICES OFFICER | 40 | $108,263 |
| Vivian Banks | DIRECTOR OF INDIVIDUAL & INSTITUTIONAL LIVING | 40 | $103,824 |
| Eric Berniker | DIRECTOR | 1 | $0 |
| Adam Blinderman | DIRECTOR | 1 | $0 |
| Joshua D Rand | DIRECTOR | 1 | $0 |
| Alan Levine | DIRECTOR | 1 | $0 |
| Tom Carroll | DIRECTOR | 1 | $0 |
| Kevin M Glassman Md | DIRECTOR | 1 | $0 |
| Lee Brodsky | DIRECTOR | 1 | $0 |
| Robert Tuchman | DIRECTOR | 1 | $0 |
| Dorine Gordon | DIRECTOR | 1 | $0 |
| Peter Rosenberger | DIRECTOR | 1 | $0 |
| Nancy Miringoff | DIRECTOR | 1 | $0 |
| Matthew Perline | DIRECTOR | 1 | $0 |
| David Lubars | DIRECTOR | 1 | $0 |
| Ken Dashow | DIRECTOR | 1 | $0 |
| Alice Claar | DIRECTOR | 1 | $0 |
| Lennard Katz | SECRETARY | 2 | $0 |
| W Marc Lane | TREASURER | 2 | $0 |
| Wendy J Schriber Esq | VICE CHAIRMAN | 2 | $0 |
| Allen J Popowitz Esq | CHAIRMAN | 2 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202042819349300724_public.xml