Organizations Filed Purposes:
THE CEREBRAL PALSY FOUNDATION IS AN ORGANIZATION DEDICATED TO FUNDING RESEARCH AND EDUCATIONAL ACTIVITIES DIRECTLY RELEVANT TO DISCOVERING THE CAUSE, CURE AND EVIDENCE BASED CARE FOR THOSE WITH CEREBRAL PALSY AND RELATED DEVELOPMENTAL DISABILITIES. (CONTINUED ON SCHEDULE O)
THE FOUNDATION DEVELOPS AND SPEARHEADS INITIATIVES DESIGNED TO CHANGE LIVES TODAY FOR PEOPLE WITH CEREBRAL PALSY THROUGH RESEARCH, INNOVATION, AND COLLABORATION.
THE FOUNDATION PROVIDES FINANCIAL SUPPORT TO RIGOROUSLY REVIEWED, SCIENTIFICALLY IMPORTANT RESEARCH RELEVANT TO CEREBRAL PALSY AND OTHER DEVELOPMENTAL DISABILITIES. THE FOUNDATION ALSO PROVIDES MEDICAL EXPERTISE AS REQUESTED BY OTHER ORGANIZATIONS AND SERVES AS A RESOURCE FOR THE INTERNATIONAL PUBLIC, CLINICIANS AND POLICY-MAKERS ABOUT BEST HEALTH CARE PRACTICES, PREVENTION AND CURATIVE STRATEGIES FOR CEREBRAL PALSY. THE FOUNDATION IS ALSO FOCUSING ITS ATTENTION ON RESEARCH DIRECTED AT ISSUES OF EARLY DIAGNOSIS, MECHANISMS OF NERVOUS SYSTEM INJURY AND REPAIR, REGENERATIVE TREATMENTS, NEUROLOGICAL REHABILITATION, ORTHOPEDIC REHABILITATION AND ENGINEERING SOLUTIONS AS WELL AS RESEARCH TO PREVENT THE SECONDARY NEUROMUSCULAR, MUSCULOSKELETAL AND CARDIOVASCULAR COMPLICATIONS SEEN IN ADULTS WITH CEREBRAL PALSY. THERE ARE APPROXIMATELY 1 MILLION CHILDREN AND ADULTS IN THE USA WITH CEREBRAL PALSY AND RELATED DEVELOPMENTAL DISABILITIES, MORE CLINICAL AND BASIC BIOMEDICAL RESEARCH IS URGENTLY NEEDED FOR IMPROVING NEUROLOGICAL FUNCTIONS, PREVENTING MEDICAL COMPLICATIONS, AND OPTIMIZING QUALITY OF LIFE IN THESE INDIVIDUALS FROM INFANCY THROUGH ADULTHOOD.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
Name | Title | Hours Per Week | Total Salary |
Rachel Jordan | EXECUTIVE DIRECTOR | 35 | $166,350 |
Tracy Pickar | Associate Executive Director | 35 | $123,375 |
Cynthia Frisina | Vice President of Partnerships | 35 | $113,692 |
Peter W Shapiro | DIRECTOR | 1 | $0 |
Lisa B Baird | Director (thru 6/10/20) | 1 | $0 |
Levee Brooks | Director | 1 | $0 |
Ila Eckhoff | Director | 1 | $0 |
Dr Peter L Rosenbaum | DIRECTOR (thru 9/29/2020) | 1 | $0 |
Dr Deborah Gaebler-Spira | Director | 1 | $0 |
Dr Andrea Duncan | Director | 1 | $0 |
Patrick Downes | Treasurer | 1 | $0 |
Michelle Kassner | CHAIRMAN | 1 | $0 |
James P Volcker | V.P & SECRETARY | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202110629349300911_public.xml