CHAI LIFELINE INC
151 WEST 30TH STREET 7TH FLOOR, NEW YORK, NY 10001 chailifeline.org

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Organizations Filed Purposes: THE DIAGNOSIS OF SERIOUS PEDIATRIC ILLNESS AFFECTS THE ENTIRE FAMILY. CHAI LIFELINE PROVIDES THE EMOTIONAL, SOCIAL, AND FINANCIAL SUPPORT THAT ENABLES YOUNG PATIENTS, THEIR PARENTS AND SIBLINGS TO WITHSTAND THE CRISES AND DAILY CHALLENGES OF LIVING WITH PEDIATRIC ILLNESS.

TO SUPPORT YOUNG PATIENTS, THEIR PARENTS AND SIBLINGS, TO WITHSTAND THE CRISES AND DAILY CHALLENGES OF LIVING WITH PEDIATRIC ILLNESS.

CHAI LIFELINE OPERATES TWO SUMMER CAMP PROGRAMS ON ONE CAMPUS FOR SERIOUSLY ILL CHILDREN. CAMP SIMCHA PROVIDES VACATIONS TO CHILDREN AND TEENS WITH CANCER AND OTHER BLOOD-BASED ILLNESSES. CAMP SIMCHA SPECIAL IS DESIGNED TO MEET THE MEDICAL AND SOCIAL NEEDS OF CHILDREN AND TEENS WITH MULTIPLE, DISPARATE CHRONIC ILLNESSES AND/OR DISABILITIES. EACH CAMP RUNS TWO, TWO-WEEK SESSIONS EVERY SUMMER AT THEIR 125-ACRE, FULLY HANDICAPPED ACCESSIBLE CAMPGROUND IN GLEN SPEY, NY. ACTIVITIES INCLUDE ADAPTED SPORTS, SWIMMING (INCLUDING RED CROSS INSTRUCTION), BOATING, CRAFTS, WORKSHOPS, AND SPECIAL EVENTS LIKE CONCERTS AND SHOWS. THE GOALS OF THE CAMPS ARE TO FACILITATE INDEPENDENCE; BUILD SOCIAL, EMOTIONAL AND DAILY LIVING SKILLS; ENHANCE KNOWLEDGE OF ONE'S ILLNESS AND CAPABILITIES; AND ENCOURAGE THE DEVELOPMENT OF FRIENDSHIPS AND SUPPORTIVE RELATIONSHIPS THAT CONTINUE THROUGHOUT THE YEAR. IN 2019, 504 CAMPERS ATTENDED CAMP SIMCHA/CAMP SIMCHA SPECIAL.

CHAI LIFELINE PROVIDES EMOTIONAL AND SOCIAL SUPPORT FROM THE MOMENT OF DIAGNOSIS THROUGH TREATMENT AND RECOVERY. WHEN CHILDREN ARE CHRONICALLY ILL, CHAI LIFELINE'S INTERVENTION CONTINUES UNTIL THE CHILD REACHES 21. GOALS INCLUDE ENABLING THE FAMILY UNIT TO CONTINUE TO FUNCTION DURING MEDICAL CRISES; PROVIDING IN-HOSPITAL SUPPORT TO PATIENTS AND CAREGIVERS; AND BRINGING JOY AND HOPE TO YOUNG PATIENTS AND THEIR FAMILIES. INITIAL SUPPORT BEGINS WITH A CASE MANAGER'S EVALUATION THAT IDENTIFIES NEEDS AND SUGGESTS PROGRAMMATIC RESPONSES. IN 2019, CHAI LIFELINE PROVIDED EMOTIONAL, SOCIAL, AND FINANCIAL SUPPORT TO 5,904 FAMILIES THROUGH REFERRALS, INFORMATION AND ADVOCACY CONTACTS; 8,012 VOLUNTEER VISITS RAISED SPIRITS AND OFFERED NEEDED RESPITE TO PARENTS STANDING VIGIL AT CHILDREN'S BEDSIDES; 12,950 RIDES BY VOLUNTEERS OR CHAI LIFELINE VAN TO MEDICAL APPOINTMENTS, THUS FACILITATING TREATMENT COMPLIANCE; 69,170 HOT MEALS THAT WERE TASTY ALTERNATIVES TO HOSPITAL FOOD FOR PATIENTS AND ALLOWED CAREGIVERS TO EAT NUTRITIOUSLY WITHOUT LEAVING A CHILD'S BEDSIDE; 1,542 HOURS OF INSURANCE ADVOCACY THAT HELPED 300 FAMILIES UNDERSTAND THEIR COVERAGE, FIGHT DENIALS AND TURNDOWNS, AND COMPLETE PAPERWORK ACCURATELY; AND 484 OVERNIGHT VISITS AT THE CHAI HOUSE FOR FAMILIES WITH LOVED ONES AT THE CHILDREN'S HOSPITAL OF PHILADELPHIA.

FAMILY AND COMMUNITY PROGRAMS: THESE PROGRAMS HELP YOUNG PATIENTS AND THEIR FAMILIES LIVE AS NORMALLY AS POSSIBLE WHILE FIGHTING ILLNESS BY ENHANCING EMOTIONAL AND SOCIAL BONDS. IN THE PAST YEAR, 460 BIG BROTHERS AND SISTERS WERE MENTORS TO ILL CHILDREN AND SIBLINGS. 287 RECREATIONAL ACTIVITIES FOR PATIENTS, SIBLINGS, PARENTS, AND FAMILIES OFFERED OPPORTUNITIES FOR FRIENDSHIP AND SUPPORT. 29 HOLIDAY PARTIES AND FAMILY DAYS GAVE CHILDREN AND FAMILIES A CHANCE TO CELEBRATE TOGETHER. SIBLINGS WERE ABLE TO DEVELOP PEER FRIENDSHIPS WITH OTHERS LIVING WITH ILLNESS OR LOSS IN THEIR HOMES AT 120 SIBLING ACTIVITIES. 913 HOURS OF COUNSELING HELPED FAMILIES RETURN TO PREVIOUS LEVELS OF FUNCTIONING. MORE THAN 560 HOURS OF TUTORING AND WEBCAM CONNECTIONS BETWEEN SCHOOL ROOMS AND HOSPITAL ROOMS EASED THE WAY BACK TO SCHOOL FOR CHILDREN INCAPACITATED BY ILLNESS. 1,836 CRISIS INTERVENTION WORKSHOPS, PRESENTATIONS, AND MEETINGS WITH FAMILIES, SCHOOLS, AND COMMUNITY ORGANIZATIONS.

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Data for this page was sourced from XML published by IRS (public 990 form dataset) from: https://s3.amazonaws.com/irs-form-990/202043179349301539_public.xml