Organizations Filed Purposes:
OUR MISSION: DRIVE RESEARCH, EXPAND KNOWLEDGE, AND ADVANCE CARE FOR THE NF COMMUNITY. OUR VISION: END NF.
THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO ENDING NEUROFIBROMATOSIS (NF). OUR MISSION IS TO: A.) FUND RESEARCH, B.) INCREASE PUBLIC AWARENESS, C.) SUPPORT PATIENTS AND FAMILIES, D.) ENCOURAGE ESTABLISHMENT OF NF CLINICS.
RESEARCH - THE CHILDREN'S TUMOR FOUNDATION SUPPORTS NF RESEARCH THROUGH A RANGE OF FUNDING MECHANISMS. OUR INVESTMENTS IN RESEARCH ARE THREE-FOLD: 1) TO ATTRACT TALENTED INVESTIGATORS TO NF RESEARCH; 2) TO SUPPORT INNOVATIVE RESEARCH; AND 3) TO FOSTER COLLABORATIVE EFFORTS TO FIND TREATMENTS AND CURES FOR NEUROFIBROMATOSIS. THE FOUNDATION HAS BEEN AT THE FOREFRONT OF KEY ADVANCES IN NF RESEARCH INCLUDING FUNDING THE LABORATORIES THAT DISCOVERED THE NF1 AND NF2 GENES, SUPPORTING GROUNDBREAKING CLINICAL TRIALS, AND ESTABLISHING THE FIRST NATIONWIDE NF CLINIC NETWORK AND NF PATIENT REGISTRY. THE FOUNDATION SPONSORS AN ANNUAL SCIENTIFIC CONFERENCE WHICH BRINGS RESEARCHERS TOGETHER TO DISCUSS THE LATEST SCIENTIFIC DEVELOPMENTS RELATED TO NF. ADDITONALLY, OUR PORGRAMS ARE DESIGNED TO INTEGRATE WITH AND SUPPORT LARGER FEDERALLY FUNDED PROJECTS THROUGH THE CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAM (CDMRP) AND NIH.
PUBLIC EDUCATION AND PATIENT SUPPORT - THE CHILDREN'S TUMOR FOUNDATION ENGAGES IN PUBLIC EDUCATION THROUGH ITS WEBSITE, QUARTERLY NEWSLETTERS, MEDIA COVERAGE, AND ITS NATIONAL PROGRAMS. THROUGH OUR NF ENDURANCE AND NF WALK PROGRAMS, THE FOUNDATION HIGHLIGHTS NF HEROES AND THEIR TRIUMPHANT SPIRITS. THE FOUNDATION ALSO SPONSORS BENEFIT DINNERS AND REGIONAL AND LOCAL EVENTS TO PROMOTE AWARENESS. THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO SUPPORTING PATIENTS WITH NF AS WELL AS THEIR FAMILY MEMBERS. THROUGH THE NF CLINIC NETWORK AND THE ANNUAL NF FORUM, THE FOUNDATION BRINGS RESEARCHERS, PROVIDERS, AND FAMILIES TOGETHER TO DISCUSS DEVELOPMENTS IN TREATMENTS. THE FOUNDATION ALSO SPONSORS THE ANNUAL NF CAMP WHICH BRINGS NF TEENS TOGETHER FOR ONE WEEK TO ENJOY THE SUPPORT AND FELLOWSHIP OF THEIR PEERS. REGIONAL SYMPOSIA ARE ALSO HELD THROUGHOUT THE YEAR.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Annette Bakker | PRESIDENT | 37.5 | $327,948 |
| Michele Przypyszny | CHIEF ADVANCEMENT OFFICER | 37.5 | $229,294 |
| Salvatore La Rosa | CHIEF SCIENTIFIC OFFICER | 37.5 | $217,245 |
| Simon Vukelj | CHIEF MARKETING OFFICER | 37.5 | $190,440 |
| Sarah Bourne | VP, FINANCE AND OPERATIONS | 37.5 | $143,156 |
| Barbara Gallagher | VICE PRESIDENT OF DEVELOPMENT | 37.5 | $136,710 |
| Patrice Pancza | VP, EXTERNAL RELATIONS | 37.5 | $122,193 |
| Tracy Galloway | VICE CHAIR | 1 | $0 |
| Stuart Suna | BOARD MEMBER | 1 | $0 |
| Steven L Mckenzie | BOARD MEMBER | 1 | $0 |
| Simone Manso | BOARD MEMBER | 1 | $0 |
| Scott Plotkin | BOARD MEMBER | 1 | $0 |
| Robert Brainin | BOARD MEMBER | 1 | $0 |
| Richard Soll | BOARD MEMBER | 1 | $0 |
| Richard Horvitz | CHAIR | 1 | $0 |
| Renie Moss | BOARD MEMBER | 1 | $0 |
| Randall Stanicky | TREASURER | 1 | $0 |
| Rachel Tiven | BOARD MEMBER (OUTGOING) | 1 | $0 |
| Peggy Wallace | BOARD MEMBER | 1 | $0 |
| Michael Peterson | BOARD MEMBER | 1 | $0 |
| Liz Rodbell | BOARD MEMBER | 1 | $0 |
| Linda Halliday Martin | CHAIR EMERITUS (OUTGOING) | 1 | $0 |
| Lee Babbis | BOARD MEMBER | 1 | $0 |
| Laura Perfetti | BOARD MEMBER | 1 | $0 |
| Kenneth Rudd | BOARD MEMBER | 1 | $0 |
| John Golfinos | BOARD MEMBER | 1 | $0 |
| Gabriel Groisman | SECRETARY | 1 | $0 |
| Daniel Gilbert | BOARD MEMBER | 1 | $0 |
| Daniel Altman | BOARD MEMBER | 1 | $0 |
| Carol Kalagher | BOARD MEMBER | 1 | $0 |
| Bruce R Korf Md Phd | BOARD MEMBER | 1 | $0 |
| Amy Boulas | BOARD MEMBER | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202042399349300529_public.xml