Organizations Filed Purposes:
Dedicated to increasing awareness of progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and related brain diseases;
CurePSP advances the understanding and seeks treatment and cure for progressive supranuclear palsy(PSP) and related "prime of life" neurodegenerative diseases by funding research that focuses on (a) the causes and risk factors for these disorders, (b) biomarkers and clinical tests that aid in diagnosis, (c) genetic variants that are associated with the diseases, (d) therapies that would prevent, stop, or reverse brain damage associated with pathological protein accumulation in the brain, and (e) aiding pharmaceutical companies and research institutions in recruitment of cohorts for clinical trials and marketing of those trials. CurePSP provides critical brain-tissue samples to researchers through its support of the Mayo Clinic's brain bank.
CurePSP advocates for patients, families, and caregivers managing prime of life neurodegeneration to improve quality of life and patient outcomes. CurePSP does this through family conferences, caregiver retreats, volunteer development, professional education, online and printed resources, and social media. CurePSP supports some 50 support groups and around 200 volunteers providing online, telephone, and face-to-face support worldwide. CurePSP's Cherie Levien Quality of Life Fund provides professional in-home care to families in need.
CurePSP publishes a library of printed and online educational materials for families, patients, physicians and other healthcare professionals. The foundation sponsors professional education conferences in collaboration with leading institutions to increase knowledge of the disease that will lead to earlier and more accurate diagnosis and better patient care. Several dozen volunteer events annually supported by CurePSP further educate the general public. CurePSP uses several social media platforms to communicate with its constituents, maintains an online patient and caregiver forum, and produces national webinars, online support groups, and online presentations from clinicians and researchers.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| David Kemp | President | 40 | $220,000 |
| Bobby Hand | Director | 2 | $0 |
| Alex Pantelyat | Director | 2 | $0 |
| Jessica Shurer | Director | 3.5 | $0 |
| John Jr Burhoe Thru 32020 | Director | 2 | $0 |
| Orseth Maggie | Director | 3 | $0 |
| Mcclellan James | Director | 2 | $0 |
| Stephen Goldman | Director | 2 | $0 |
| Brent Bluett | Director | 3 | $0 |
| Andy Maus | Director | 2 | $0 |
| Ileen Mcfarland | Director | 40 | $0 |
| Larry Golbe Rejoined 12020 | Director | 10 | $0 |
| John Sr Burhoe | Chair Emeritus | 3 | $0 |
| Jeff Freidman Thru 102019 | Director | 2 | $0 |
| Everett Cook | Director | 2 | $0 |
| Larry Levien | Secretary | 2 | $0 |
| Justin Shea | Treasurer | 2 | $0 |
| Amy Branch | Vice Chair | 15 | $0 |
| William Mcfarland | Chair | 6 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202101249349301950_public.xml