Organizations Filed Purposes:
WE EXIST TO CREATE A WORLD FREE OF MS. WE ARE FOCUSED SO PEOPLE AFFECTED BY MS CAN LIVE THEIR BEST LIVES AS WE STOP MS IN ITS TRACKS, RESTORE WHAT HAS BEEN LOST AND END MS.
CLIENT AND COMMUNITY SERVICES - THE SOCIETY PROVIDES INFORMATION, RESOURCES, AND SUPPORT THAT SEEKS TO MEET THE NEEDS OF PEOPLE AFFECTED BY MS AS A WHOLE AND INDIVIDUALLY. THE SOCIETY IS COMMITTED TO OFFERING PROGRAMS FOR ALL PEOPLE REGARDLESS OF WHERE THEY LIVE OR WHERE THEY ARE IN THEIR MS JOURNEY. PROGRAMS, SERVICES AND RESOURCES FOR PEOPLE AFFECTED BY MS FACILITATE EDUCATION, RECREATION, PHYSICAL AND EMOTIONAL WELLNESS, PROVIDE FINANCIAL RESOURCES AND A CONNECTION FOR PEOPLE AFFECTED BY MS. MS NAVIGATORS PARTNER WITH INDIVIDUALS TO NAVIGATE THE CHALLENGES OF MS UNIQUE TO EACH SITUATION. THEY PROVIDE: INFORMATION AND EDUCATION; EMOTIONAL SUPPORT RESOURCES; ASSIST WITH THE COMPLEXITIES OF FINDING A HEALTHCARE PROVIDER, BENEFITS, INSURANCE AND ACCESS TO COVERAGE, AND EMPLOYMENT; RESOURCES TO FACE FINANCIAL CHALLENGES AND PLAN FOR THE FUTURE; WELLNESS STRATEGIES THAT CAN MAKE AN IMPACT ON QUALITY OF LIFE WITH MS; ASSESSMENT OF PERSONALIZED CASE MANAGEMENT; AND CRISIS INTERVENTION IN TIMES OF NEED. IN 2019, MS NAVIGATOES PROVIDED SUPPORT TO 57,080 PEOPLE. IN ADDITION, MORE THAN 28,900 PEOPLE PARTICIPATED IN 378 SOCIETY PROGRAMS (IN PERSON, PHONE BASED, AND ONLINE) ON TOPICS SUCH AS: MS EDUCATION; HEALTH AND WELLNESS; FAMILY AND RELATIONSHIPS; FINANCIAL RESOURCES; MOBILITY AND ACCESSIBILITY; SOCIAL AND EMOTIONAL SUPPORT; AND RESEARCH AND CLINICAL TRIAL UPDATES. COMMUNITY PROGRAMS INCLUDE COLLABORATING WITH OTHER COMMUNITY ORGANIZATIONS, FOCUSING ON ACCESS TO HEALTHCARE, REHABILITATION, TREATMENTS AND THERAPIES; LONG-TERM CARE; DISABILITY RIGHTS ISSUES; VOCATIONAL TRAINING AND REHABILITATION, WELLNESS AND FITNESS; AND, OUTREACH AND EDUCATION TO RURAL AND UNDERSERVED POPULATIONS.
RESEARCH - IN FISCAL 2019, THE SOCIETY INVESTED $40.9 MILLION TO SUPPORT MORE THAN 400 NEW AND ONGOING RESEARCH PROJECTS AROUND THE WORLD AIMED AT STOPPING MS IN ITS TRACKS, RESTORING FUNCTION, AND ENDING THE DISEASE FOREVER. THE SOCIETY ENGAGED 80 EXPERT PEER REVIEWERS TO EVALUATE 520 RESEARCH GRANTS, FELLOWSHIPS AND PILOT GRANT PROPOSALS TO HELP THE SOCIETY IDENTIFY THE MOST PROMISING RESEARCH INVESTMENTS. RESEARCH PRIORITY AREAS TO DRIVE BREAKTHROUGHS INCLUDE: DEFINING THE CONTRIBUTION OF GENETICS AND THE RISK FOR DEVELOPING MS AND DISEASE COURSE; UNDERSTANDING MS PATHOLOGY AND PATHOPHYSIOLOGY; UNDERSTANDING AND TREATING MS PROGRESSION; IDENTIFYING STRATEGIES FOR NEUROPROTECTION AND NERVOUS SYSTEM REPAID; AND, ELUCIDATING THE CAUSE OF MS SYMPTOMS, THE IMPACT OF COMORBIDITIES, AND IDENTIFYING REHABILITATION, WELLNESS BEHAVIORS AND LIFESTYLE APPROACHES THAT IMPACT DISEASE COURSE, SYMPTOMS AND OVERALL HEALTH.
PUBLIC EDUCATION - THE SOCIETY SEEKS TO EXPAND AND DEEPEN THE INDIVIDUAL AND COLLECTIVE EXPERIENCES OF THE MS MOVEMENT. THIS INCLUDES EDUCATING THE PUBLIC ABOUT MULTIPLE SCLEROSIS INCLUDING THE SOCIETY'S AWARENESS CAMPAIGNS, PUBLIC SERVICE ANNOUNCEMENTS, MOMENTUM, WHICH IS THE SOCIETY'S FLAGSHIP MAGAZINE DISTRIBUTED QUARTERLY TO 538,000 PEOPLE LIVING WITH MULTIPLE SCLEROSIS, HEALTHCARE PROVIDERS, SUPPORTERS OF THE SOCIETY AND MS CONNECTION NEWSLETTER, WHICH INCLUDES INFORMATION ABOUT PROGRAMS AND ACTIVITIES IN LOCAL MARKETS. IN ADDITION TO NATIONWIDE EMAIL NEWSLETTERS SHARE TWICE MONTHLY WITH APPROXIMATELY 900,000 RECIPIENTS (ONE MESSAGE RELATED TO SERVICES, THE OTHER TO OVERALL NEWS), MANY PEOPLE ENGAGE IN CONVERSATIONS VIA THE SOCIETY'S ONLINE COMMUNITY (55,000 MEMBERS), AND SOCIAL MEDIA (OVER 1.2 MILLION FOLLOWERS). NEARLY 400,000 PEOPLE VISIT THE SOCIETY'S WEBSITE EACH MONTH TO ACCESS INFORMATION AND SUPPORT.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Cynthia Zagieboylo | PRESIDENT & CEO | 40 | $553,948 |
| Paul Weiss | CHIEF CRM, MKT & TECH OFFICER | 40 | $330,082 |
| John Scott | CHIEF DEV & COMM LEAD. OFFICER | 40 | $325,887 |
| Tim Coetzee | CHF ADVOC, SVC & RSRCH OFFCR | 40 | $325,615 |
| Maureen Reeder | EVP, LEAD & ORG (THRU 1/25/19) | 40 | $278,986 |
| Lisa Goldfarb | CHIEF HR & VOL ENG OFFICER | 40 | $274,945 |
| Tami Caesar | CFO & COO | 40 | $265,896 |
| Phyllis Robsham | EVP, COMMUNITY LEADERSHIP | 40 | $252,355 |
| Graham Mcreynolds | Chief M & D Officer | 40 | $251,636 |
| Jennifer Lee | EVP, FUNDRAISING EVENTS | 40 | $238,271 |
| Kay Julian | EVP, SERVICES | 40 | $235,715 |
| Jennifer Douglas | EVP, TECHNOLOGY (Thru 3/27/19) | 40 | $230,540 |
| Eric Hilty | CHIEF LEGAL OFFICER | 40 | $225,691 |
| Bari Talente | EVP, ADVOCACY | 40 | $218,802 |
| Bruce Bebo | EVP, RESEARCH PROGRAMS | 40 | $205,706 |
| Sherri Giger | EVP, MARKETING (THRU 9/7/2018) | 40 | $197,259 |
| Rebecca Fehlig | EVP, OPERATIONS | 40 | $186,589 |
| Cynthia Perrazo | DIRECTOR (Thru 11/9/2018) | 5 | $0 |
| Valli Baldassano | DIRECTOR (Thru 11/9/2018) | 5 | $0 |
| Malcolm P Wattman Esq | DIRECTOR | 5 | $0 |
| Diana Twadell | Director | 5 | $0 |
| Peter G Tarricone | DIRECTOR | 5 | $0 |
| Richard B Slifka | DIRECTOR | 5 | $0 |
| Larry Schmid | Director | 5 | $0 |
| David M Rottkamp | DIRECTOR | 5 | $0 |
| Tobi Rogowsky | Director | 5 | $0 |
| Chet Porembski | Director (As of 11/9/2018) | 5 | $0 |
| Mike Pongon | DIRECTOR | 5 | $0 |
| Russel Parker | DIRECTOR | 5 | $0 |
| Elizabeth Page | DIRECTOR | 5 | $0 |
| Eugene May | DIRECTOR | 5 | $0 |
| William Marraccini | DIRECTOR | 5 | $0 |
| Mary Hughes Md | DIRECTOR | 5 | $0 |
| William Holley | DIRECTOR | 5 | $0 |
| Bonnie Higgins | DIRECTOR | 5 | $0 |
| Ian Harris | Director (As of 11/9/2018) | 5 | $0 |
| Andy Harris | Director (As of 11/9/2018) | 5 | $0 |
| Peter Harbilas | DIRECTOR | 5 | $0 |
| Shyam Gidumal | DIRECTOR | 5 | $0 |
| Elizabeth Forstneger | DIRECTOR | 5 | $0 |
| Dana M Foote | DIRECTOR | 5 | $0 |
| Doug Coy | DIRECTOR | 5 | $0 |
| Hafiz Chandiwala | DIRECTOR | 5 | $0 |
| Ron Boire | DIRECTOR | 5 | $0 |
| Michael Bogdonoff | Director (As of 11/9/2018) | 5 | $0 |
| Gregory R Bishop | DIRECTOR | 5 | $0 |
| Rick Anderson | DIRECTOR | 5 | $0 |
| Mindy B Alpert | DIRECTOR | 5 | $0 |
| Peter Porrino | TREASURER | 5 | $0 |
| Linda Mcaleer | SECRETARY | 5 | $0 |
| Caroline Whitacre | VICE CHAIR | 5 | $0 |
| Laura Vaccaro | VICE CHAIR | 5 | $0 |
| William T Monahan | VICE CHAIR | 5 | $0 |
| Richard Knutson | CHAIR ELECT | 5 | $0 |
| Peter A Galligan | CHAIR | 5 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202001779349300030_public.xml