Organizations Filed Purposes:
THE NEW YORK CITY HEMPOHILIA CHAPTER (NYCHC) IS A NOT FOR PROFIT 501(C)(3) ORGANIZATION INCORPORATED IN 2009 TO ADDREAA THE NEEDS OF THE BLEEDING DISORDER COMMUNITY IN THE GREATER NEW YORK CITY AREA. NYCHC'S MISSION IS TO FOSTER A SENSE OF COMMUNITY AMONGST PEOPLE AFFECTED BY BLEEDING DISORDERS, AND TO ASSIST THEM AND THEIR FAMILIES THROUGH INFORMATION, EDUCETION, ADVOCACY SHARED EXPERIANCES AND COMMUNITY SUPPORT.
THE ORGNANIZATION CONDUCTS A VARIETY OF ACTIVITIES DESIGNED TO EDUCATE, INFORM AND EXPAND RESEARCH AND KNOWLEDGE, AND GENERALLY IMPROVE THE WELL BEING OF PEOPLE AFFECTED BY BLEEDING DISORDERS.
THE ANNUAL NEW YORK CITY HEMOPHILIA WALK RAISES AWARENESS OF BLEEDING DISORDERS WITHIN AND OUSTIDE OF THE COMMUNITY. THE ANNUAL NEW YORK CITY HEMOPHILIA WALK RAISES AWARENESS OF BLEEDING DISORDERS WITHIN AND OUTSIDE OF THE COMMUNITY. IT ATTRACTS THOUSANDS OF PARTICIPANTS,GARNERS MEDIA ATTENTION, AND RAISES CRITICAL FUNDS FOR PROGRAMS AND SERVICES. NYCHC EDUCATION DAY BRINGS PEOPLE AFFECTED BY BLEEDING DISORDERS TOGETHER FOR CRITICAL LEARNING, SHARING, AND SUPPORT. THE DAY ATTRACTS MORE THAN 300 AFFECTED INDIVIDUALS. SESSION TOPICS INCLUDE MEDICATION ADHERENCE, DEALING WITH INHIBITORS (IMMUNE RESPONSE TO MEDICATION), ISSUES FACING WOMEN WITH BLEEDING DISORDERS, ACCESS TO CARE INCLUDING INSURANCE, LIFE TRANSITION ISSUES FOR AFFECTED INDIVIDUALS AND CARETAKERS, AND MANY MORE. THIS EDUCATION LEADS TO BETTER ACCESS TO CARE, BETTER SELF-CARE, AND IMPROVED OUTCOMES. NYCHC ALSO PROVIDES PROGRAMS AND SERVICES DESIGNED TO PROVIDE SUPPORT TO SPECIFIC POPULATIONS WITH THE COMMUNITY. FOR EXAMPLE, DAD IN ACTION IS GEARED TOWARDS DADS IN THE COMMUNITY WHO EITHER HAVE A BLEEDING DISORDER OR HAVE CHILDREN WITH A BLEEDING DISORDER; CONNECTIONS IS GEARED TOWARDS FAMILIES WHO ARE EITHER NEW TO HEMOPHILIA, NEW TO BLEEDING DISORDERS, OR BOTH.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Dr Regina Legere-Buccellato | PRESIDENT | 0 | $0 |
| Julia Golier | SECRETARY | 0 | $0 |
| Brian Dixon | TREASURER | 0 | $0 |
| Erin Cirelli | VICE PRESIDE | 0 | $0 |
| Kurt Wiesenmaier | BOARD MEMBER | 0 | $0 |
| Alan Neaigus | BOARD MEMBER | 0 | $0 |
| Daniel Kraus | BOARD MEMBER | 0 | $0 |
| Barbara Gordon | BOARD MEMBER | 0 | $0 |
| Elizabeth Cedeno | BOARD MEMBER | 0 | $0 |
| Alice Arapshian | BOARD MEMBER | 0 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202003219349312010_public.xml