Organizations Filed Purposes:
HUNTER'S HOPE FOUNDATION WAS ESTABLISHED TO ADDRESS THE ACUTE NEED FOR INFORMATION AND RESEARCH WITH RESPECT TO KRABBE DISEASE AND RELATED LEUKODYSTROPHIES. IN ADDITION, WE STRIVE TO SUPPORT AND ENCOURAGE THOSE AFFLICTED AND THEIR FAMILIES AS THEY STRUGGLE TO ENDURE, ADJUST, AND COPE WITH THE DEMANDS OF THE FATAL ILLNESSES. ACCORDINGLY OUR MISSION IS FOUR FOLD:- TO BROADEN PUBLIC AWARENESS OF KRABBE DISEASE AND OTHER LEUKODYSTROPHIES THUS INCREASING THE PROBABILITY OF EARLY DETECTION AND TREATMENT.- TO GATHER AND PROVIDE CURRENT, FUNCTIONAL INFORMATION, AND SERVICE LINKAGES TO FAMILIES OF CHILDREN WITH LEUKODYSTROPHIES.- TO FUND RESEARCH EFFORTS THAT WILL IDENTIFY NEW TREATMENTS, THERAPIES, AND ULTIMATELY, A CURE FOR KRABBE DISEASE AND OTHER LEUKODYSTROPHIES.- TO ESTABLISH AN ALLIANCE OF HOPE THAT WILL NOURISH, AFFIRM, AND CONFRONT THE URGENT NEED FOR MEDICAL, FINANCIAL, AND EMOTIONAL SUPPORT OF FAMILY MEMBERS AND THOSE AFFLICTED WITH LEUKODYSTROPHIES.
TO INCREASE PUBLIC AWARENESS, TO SUPPORT, TO FUND RESEARCH EFFORTS TO FIND A CURE FOR KRABBE DISEASE AND OTHER LEUKODYSTROPHIES, AND TO PROMOTE FAMILY VALUES TO PARENTS ALL OVER THE WORLD.
EDUCATION & AWARENESS - THE FOUNDATION STRIVES TO BROADEN PUBLIC AWARENESS OF KRABBE DISEASE AND OTHER LEUKODYSTROPHIES THUS INCREASING THE PROBABILITY OF EARLY DETECTION AND TREATMENT.
FAMILY ASSISTANCE - THE FOUNDATION UNDERTAKES TO GATHER AND PROVIDE CURRENT, FUNCTIONAL INFORMATION, AND SERVICE LINKAGES TO FAMILIES OF CHILDREN WITH LEUKODYSTROPHIES.THE FOUNDATION STRIVES TO ESTABLISH AN ALLIANCE OF HOPE THAT WILL NOURISH, AFFIRM, AND CONFRONT THE URGENT NEED FOR MEDICAL, FINANCIAL, AND EMOTIONAL SUPPORT OF FAMILY MEMBERS AND THOSE AFFLICTED WITH LEUKODYSTROPHIES.
RESEARCH - THE FOUNDATION'S GOAL IS TO FUND RESEARCH EFFORTS THAT WILL IDENTIFY NEW TREATMENTS, THERAPIES, AND ULTIMATELY, A CURE FOR KRABBE DISEASE AND OTHER LEUKODYSTROPHIES.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Jacque Waggoner | C.E.O. | 40 | $75,000 |
| Brad Rye | DIRECTOR | 1 | $0 |
| David Kern | DIRECTOR | 1 | $0 |
| Steven Schmitt | DIRECTOR | 1 | $0 |
| Phil May | DIRECTOR | 1 | $0 |
| Greg Connors | DIRECTOR | 1 | $0 |
| Camryn Kelly | DIRECTOR | 1 | $0 |
| Paul Boser | TREASURER | 2 | $0 |
| Erin Kelly | SECRETARY | 2 | $0 |
| Jill Kelly | CHAIRWOMAN | 8 | $0 |
| James E Kelly | PRESIDENT | 8 | $0 |
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public 990 form dataset) from:
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