Organizations Filed Purposes:
THE HERMANSKY-PUDLAK SYNDROME (HPS) NETWORK'S MISSION IS TO PROVIDE ADVOCACY, FELLOWSHIP, EDUCATION AND HOPE TO INDIVIDUALS AND FAMILIES AFFECTED BY HPS. WE FUND AND FACILITATE RESEARCH. WE DEVELOPE AND PRODUCE MATERIAL AND RESOURSES FOR HEALTHCARE.
COMPILES PATIENT DATA TO ASSIST IN RESEARCH, RUNS CONFERENCES TO COLLECT AND PROVIDE DISEASE INFORMATION AND PROVIDES INFORMATION AND SUPPORT TO AFFECTED FAMILIES.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Richard Appell | TREASURER | 0 | $0 |
| Heather Kirkwood | VP/SEC | 0 | $0 |
| Donna Appell | PRESIDENT | 0 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202041369349300044_public.xml