Organizations Filed Purposes:
The Lupus and Allied Diseases Association's mission is to advocate for those affected by lupus and allied diseases through public awareness, education and research program initiatives to improve quality of life.
To enhance quality of life for those affected by lupus and allied diseases by wielding the patient voice as a catalyst to improve healthcare and treatment access, advance research and advocacy initiatives, and promote awareness.
1. The organization supported lupus and autoimmune research to improve methods of diagnosis and treatment, as well as to find causes and cures for lupus and autoimmune diseases by funding a $120,000 grant to the Lupus Research Alliance. 2. The organization supported pediatric lupus research to improve time to diagnosis and methods of treatment, and to find causes and cures and prevent the disease in the pediatric population by funding a $50,000 grant to the Lupus Foundation of America. 3. The organization also supported mesenchymal stem cell research to advance better treatments to improve quality of life for people with lupus by funding a $50,000 grant to the Lupus Foundation of America.
The organization provided public education and advocated for those impacted by lupus and autoimmune diseases in various states and federally through education meetings, briefings, seminars, forums, public testimony, and written comments. The organization distributed informational materials, newsletters, and issue briefs; developed poster presentations; and represented the lupus and autoimmune patient perspective at education and advocacy initiatives to improve access to medical care and treatments and advance biomedical research to improve patient quality of life.
The organization promoted disease awareness by disseminating information at virtual and in person health and wellness events; participating in media interviews, press releases, speaking engagements and press conferences; posting information and resources to websites and through social media, blogs, op-eds, videos, and e-mails; and hosting informational booths in exhibit halls to improve disease awareness to the general public, medical professional community, public officials, the media, researchers, the healthcare industry, and people with lupus and allied diseases and their loved ones.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Jacqueline L Taylor | 2nd Vice President | 4 | $0 |
| Sandra M Frear | 1st Vice President | 8 | $0 |
| David L Arntsen | Secretary | 10 | $0 |
| Philip A Teague | Treasurer | 12 | $0 |
| Kathleen A Arntsen | President and CEO | 30 | $0 |
| Anne M Zablotowicz | Director | 10 | $0 |
| Lori A Vogel | Director | 4 | $0 |
| Brian J Vogel | Director | 4 | $0 |
| Jane M Porter | Director | 4 | $0 |
| Juana Mata | Director | 4 | $0 |
| Estela M Mata Carcamo | Director | 4 | $0 |
| Lisabeth S Iglesias | Director | 12 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202003429349300120_public.xml