Organizations Filed Purposes:
THE PURPOSE OF THE ORGANIZATION SHALL BE TO PROVIDE INFORMATION AND RESOURCES FOR FAMILIES AND HEALTH CARE PROFESSIONALS TO AID IN THE DIAGNOSIS AND TREATMENT OF INHERITED DISORDERS AFFECTING INDIVIDUALS AND TO SUPPORT GENETIC RESEARCH.
THEY HAVE SERVED AS A HUB BETWEEN RESEARCHERS AND HEALTHCARE PROVIDERS SO
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
| Kenneth E Bromund | TREASURER | 0 | $0 |
| Edward A Kline | . | 0 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/201703189349311840_public.xml