Organizations Filed Purposes:
1. TO SUPPORT RESEARCH RELATING TO TREATMENTS AND CURE OF SYSTEMIC JUVENILE IDIOPATHIC ARTHRITIS (SJIA); 2. PROMOTE INCREASED AWARENESS, KNOWLEDGE AND UNDERSTANDING OF SJIA BY MEDICAL PROFESSIONALS, THE GENERAL PUBLIC AND FAMILIES AFFECTED BY SJIA; 3. PROMOTE MUTUAL SUPPORT THROUGH BUILDING AND MAINTAINING AN EXTENSIVE WEB-BASED OR OTHER NETWORK OF INFORMATION AND RESOURCES FOR THE GENERAL PUBLIC AND FAMILIES.
SYSTEMIC JIA FOUNDATION PLANS SEVERAL TYPES OF FUNDRAISING: 1) DONATIONS FROM FAMILIES WITH SJIA: THE SYSTEMIC JIA FOUNDATION WILL REACH OUT TO FAMILIES WITH SJIA TO BOTH CONTRIBUTE AND RAISE FUNDS FOR THE BENEFIT OF THE SYSTEMIC JIA FOUNDATION. THE SYSTEMIC JIA FOUNDATION WILL RAISE FUNDS ONLINE, USING FUNDRAISING SITES SUCH AS CROWDRISE, OR FUNDRAISING FUNCTIONALITY ON OUR OWN WEBSITE.2) EVENT SPONSORSHIPS FROM PHARMA COMPANIES: FOR ANY EVENTS THE SYSTEMIC JIA FOUNDATION ORGANIZE, THE SYSTEMIC JIA FOUNDATION WILL REACH OUT TO PHARMA COMPANIES WHO ARE INTERESTED IN SJIA TO GIVE SPONSORSHIPS AT DIFFERENT LEVELS TO SUPPORT THE EVENT.3) GENERAL: THE SYSTEMIC JIA FOUNDATION WILL UNDERTAKE ADDITIONAL FUNDRAISING FROM A VARIETY OF SOURCES INCLUDING MAIL, EMAIL, PERSONAL AND PHONE SOLICITATIONS. THE ORGANIZATION WILL CREATE PROPOSALS AND OTHER MATERIALS THAT WILL BE NECESSARY TO SUBMIT IN ORDER FOR THE ORGANIZATION TO RECEIVE GRANTS AND DONATIONS.
SJIA FAMILY EDUCATION DAYATTENDED AND ASSISTED IN ORGANIZING THE SJIA FAMILY EDUCATION DAY AT CINICINNATI CHILDREN'S HOSPITAL ON JUNE 28, 2019 AND JUNE 29, 2019, TO PROVIDE EDUCATION AND SUPPORT TO FAMILIES WITH CHILDREN DIAGNOSED WITH SJIA AND ADULT STILL'S DISEASE.
NEXT GEN THERAPIES IN SJIA & MASORGANIZED THE NEXT GEN THERAPIES IN SJIA & MAS AT SERENDIPITY LABS, BETHESDAM MD ON OCTOBER 3, 2019 AND OCTOBER 4, 2019. THIS CONFERENCE WAS CONDUCTED TO DISCUSS VARIOUS TREATMENT OPTIONS AND TO ACCELERATE SEARCH FOR THERAPIES FOR REFRACTORY SYSTEMIC JIA, RECURRENT MAS AND ASSOCIATED LUNG DISEASE. THERAPIES DISCUSSED INCLUDE JAK-INHIBITORS (INCLUDING NEWER, MORE TARGETED JAK-INHIBITORS), IL18-BINDING PROTEIN, AND EMPALUMAB. THE CONFERENCE ALSO HOSTED MEETING OF RESYST, AN INTERNATIONAL PROJECT TO INVESTIGATE REFRACTORY SJIA.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
Name | Title | Hours Per Week | Total Salary |
Matthew Might | DIRECTOR | 1 | $0 |
Rashmi Sinha | DIRECTOR | 40 | $0 |
Jonathan Boutelle | DIRECTOR | 10 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202043179349309269_public.xml