Organizations Filed Purposes:
THE EPILEPSY ASSOCIATION IS A NOT-FOR-PROFIT CORPORATION DEDICATED TO HELPING PEOPLE COPE WITH AND MANAGE SEIZURE DISORDERS BY IMPROVING THEIR QUALITY OF LIFE, WHILE EMPOWERING INDIVIDUALS TO REACH THEIR FULL POTENTIAL WITHIN THE COMMUNITY.
PROVIDING SPECIALIZED SERVICES FOR CHILDREN, TEENS, ADULTS AND FAMILIES AFFECTED BY EPILEPSY.
Patient services: The Association provides community case management and mental health assessment services to adult clients who are affected by epilepsy. Clients meet with agency social workers to establish individualized goals. Plans are established to assist client in meeting those needs. An emphasis is placed on consumer choice, maintaining medical stability, and improving the quality of life for clients. In 2019, there were 475 adults who received case management and other social services.
Public health education: The Association provides educational presentations to a variety of community groups, students, teachers, and the general public to increase the awareness and understanding of epilepsy. Education is provided about epilepsy facts, seizure recognition, and epilepsy first aid. 20,055 individuals were reached through community education programs and another 219 individuals accessed assistance through information and referral programming.
Kids and family: The Association provides support for families who have a child with epilepsy. The Association staff assess the needs of each family member with one-on-one support and connects them with community services, provides general assistance, epilepsy education and advocacy. Services are tailored to meet the unique needs of each family. In 2019, there were 1,549 children and families who were served through programming.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Kelley S Needham | CEO | 40 | $114,024 |
| Ben Young | TRUSTEE | 1 | $0 |
| Shaylor Steele | TRUSTEE | 1 | $0 |
| Susan Stamberger | TRUSTEE | 1 | $0 |
| Diane M Spirnak | TRUSTEE | 1 | $0 |
| Courtney Schmidt | TRUSTEE | 1 | $0 |
| Jun T Park Md | TRUSTEE | 1 | $0 |
| Teri Miller | TRUSTEE | 1 | $0 |
| Jonathan Koslo | TRUSTEE | 1 | $0 |
| Guadalupe Fernandez-Ba | TRUSTEE | 1 | $0 |
| Stephen Hantus Md | TRUSTEE | 1 | $0 |
| Rocco Dipuccio | TRUSTEE | 1 | $0 |
| Lisa Scanlon | TRUSTEE | 1 | $0 |
| Denna Murlin | TRUSTEE | 1 | $0 |
| April Kingsbury Walsh | TRUSTEE | 1 | $0 |
| Michael A Liner | TRUSTEE | 1 | $0 |
| Rabon Allen | TRUSTEE | 1 | $0 |
| William P Roddy | TRUSTEE | 1 | $0 |
| Marquettes D Robinson | PRESIDENT | 1 | $0 |
| Robin Kane | TRUSTEE | 1 | $0 |
| Michael Blake | TRUSTEE | 1 | $0 |
| Mark Nuss | TRUSTEE | 1 | $0 |
| Susan D Krantz | TRUSTEE | 1 | $0 |
| Jeffery Karlovec | TRUSTEE | 1 | $0 |
| Jennifer Carlile | TRUSTEE | 1 | $0 |
| Zachary A Guzy | TRUSTEE | 1 | $0 |
| Pete Nelson | TREASURER | 1 | $0 |
| E Sean Medina | VICE PRESIDENT | 1 | $0 |
| Karen P Johnson | SECRETARY | 1 | $0 |
| Richard Bass | TRUSTEE | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202013189349310861_public.xml