Organizations Filed Purposes:
BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION'S MISSION IS TO BE AN INTERNATIONAL SUPPORT AND RESEARCH NETWORKING ORGANIZATION FOR FAMILIES OF CHILDREN AND YOUNG ADULTS WITH AN INHERITED NEUROLOGICAL DEGENERATIVE DISORDER KNOWN AS BATTEN DISEASE.
GRANTS WERE GIVEN FOR RESEARCH FOR A CURE FOR BATTEN DISEASE
PROGRAMS SUCH AS THE SIBLING PROGRAM, PARENT/MENTORS AND THE GENERAL BEREAVEMENT PROGRAM ALL WILL HELP TO ALLEVIATE STRESS AND HARDSHIP ON FAMILIES WHOSE LOVED ONES ARE VICTIMS OF BATTEN DISEASE
CONFERENCES & CONVENTIONS HELD FOR RESEARCH, DISCUSSIONS AND SUPPORT FOR A CURE FOR BATTEN DISEASE
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Marjorie Frazier | Executive Dir. | 40 | $98,289 |
| Tony Ferrandino | Director | 0 | $0 |
| Rob Geer | President | 0 | $0 |
| Tracy Vanhoutan | Vice President | 0 | $0 |
| Barbara Wuebbels | Director | 0 | $0 |
| Darlene Royalty | Director | 0 | $0 |
| Mike Collins | Secretary | 0 | $0 |
| Dave Pearce | Director | 0 | $0 |
| Bob Jensen | Director | 0 | $0 |
| Donna Fogle | Director | 0 | $0 |
| Joel Karg | Treasurer | 0 | $0 |
| Kate Haller | Director | 0 | $0 |
| Kristen Drago | Director | 0 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/201723179349302027_public.xml