Organizations Filed Purposes:
THE FOUNDATION'S MISISON IS TO INSPIRE, EMPOWER AND PROVIDE HOPE TO FAMILIES AFFECTED BY ADRENOLEUKODYSTROPHY (ALD) AND TO ASSIST IN ANY WAY POSSIBLE TO HELP MITIGATE THE AFFECTS OF ANYONE AFFLICTED WITH ALD OR ANY OTHER DISEASE OR DISABLILITY AND UNABLE TO MEET THEIR BASIC NEEDS.
THE FOUNDATION WAS ORGANIZED TO PROVIDE ASSISTANCE TO FAMILIES BATTLING ADRENOLEUKODYSTROPHY (ALD) OR ANY OTHER DISEASE OR DISABILITY AND ARE UNABLE TO MEET THEIR BASIC NEEDS. ALD IS A DISEASE WHICH IS A RARE GENETIC BRAIN DISEASE WITH CURRENTLY NO CURE AND AFFECTS MANY FAMILIES. THE FOUNDATION'S PURPOSE IS TO PROVIDE INFORMATION AND ASSISTANCE TO FAMILIES AFFECTED BY ALD OR ANY OTHER DISEASE OR DISABILITY. THE FOUNDATION PROVIDES DONATIONS FOR RESEARCH AND ASSISTS FAMILIES IN TIME OF NEED.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Steven Rohan | DIRECTOR | 0 | $0 |
| Megan Hirschbeck | TREASURER | 0 | $0 |
| John Hirschbeck | PRESIDENT | 0 | $0 |
| Erin Hirschbeck | SECRETARY | 0 | $0 |
| Denise Hirschbeck | VICE PRESIEN | 0 | $0 |
| Frank Demain | DIRECTOR | 0 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202023189349310172_public.xml