MYOSITIS ASSOCIATION
2000 Duke Street Suite 300, Alexandria, VA 22314 www.myositis.org

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Organizations Filed Purposes: The Myositis Association is the leading international nonprofit organization committed to the global community of people living with myositis, their care partners, family members, and the medical community. TMA provides patient education and support, advocacy, physician education, and research funding for myositis diseases. To learn more about myositis go to www.myositis.org. TMA's mission is to improve the lives of persons affected by myositis, fund innovative research and increase myositis awareness and advocacy. TMA accomplishes this through raising awareness, patient and physician education, support groups nationwide, research and advocacy efforts. TMA's print and electronic publications provide the latest treatment information and research news to keep patients and the myositis physician/scientist community informed of developments. Among the services TMA offers is an Annual Patient Conference. This event is moved around the U.S. geographically each year to maximize the number of

Through the organization's publications, newsletters, website and support groups, TMA educates and supports patients, care partners and clinicians about myositis diseases. TMA has approximately 55 peer-led support groups across the nation that meet periodically throughout the year. Education and updates are offered through our print and electronically produced quarterly magazine sent to approximately 12,500 members, our videos on YouTube, our Myositis 101 physician and patient booklets and through TMA's social media channels and website.

The Myositis Association's Annual Patient Conference is TMA's flagship program and is the leading international program for all of those in the myositis community. With 490 patients and care partners in attendance for our 2019 Annual Patient Conference, participating in our 96 sessions with 75 expert speakers, this year's conference provided those living with and caring for those living with myositis a truly unique opportunity network with others who share their lived experience, hear about the latest medical and scientific research from the leading international experts in myositis and autoimmune disease, and learn how to access resources to help them in their myositis journey from some of the nation's most reputable organizations that provide direct patient service support tools for mental health, health care access, and caregiver support. Attendees learn about the latest clinical evidence, myositis research and therapies as well as future predictions for those who live with myositis diseases. Myositis patients and care partners meet others with similar experiences and challenges offering an opportunity to exchange support, hope, relevant information and coping techniques.

The Myositis Association recognizes that the myositis patient's best hope for a cure lies in research. The goal of TMA's Research Funding Program is to develop a better understanding of myositis diseases, create better treatments, and, ultimately, find a cure for all forms of myositis. Since 2002, The Myositis Association has approved 59 research projects, including grants and fellowships, totaling $7 million. TMA offers a research fellowship program to attract and encourage post-doctoral trainees (PhD and MD) to pursue careers in the field of myositis research. TMA also funds research grants to initiate innovative pilot projects that will support larger funding opportunities.

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