Organizations Filed Purposes:
FOUNDED IN 1988, THE NATIONAL LYMPHEDEMA NETWORK'S MISSION IS TO CREATE AWARENESS OF LYMPHEDEMA THROUGH EDUCATION AND TO PROMOTE AND SUPPORT THE AVAILABILITY OF QUALITY MEDICAL TREATMENT FOR ALL INDIVIDUALS AT RISK FOR OR AFFECTED BY LYMPHEDEMA.THE NATIONAL LYMPHEDEMA NETWORK (NLN) IS DEDICATED TO:- PROMOTING RESEARCH INTO THE CAUSES, PREVENTION, AND TREATMENT OF LYMPHEDEMA; AND- EXPANDING THE NUMBER AND GEOGRAPHICAL DISTRIBUTION OF LYMPHEDEMA TREATMENT FACILITIES AND CERTIFIED THERAPISTS.
FOUNDED IN 1988, THE NATIONAL LYMPHEDEMA NETWORK'S MISSION IS TO CREATE AWARENESS OF LYMPHEDEMA THROUGH EDUCATION AND TO PROMOTE AND SUPPORT THE AVAILABILITY OF QUALITY MEDICAL TREATMENT FOR ALL INDIVIDUALS AT RISK FOR OR AFFECTED BY LYMPHEDEMA.
INTERNATIONAL LYMPHEDEMA CONFERENCE:IN 2016, THE NATIONAL LYMPHEDEMA NETWORK ORGANIZED AN INTERNATIONAL CONFERENCE. THERE WERE OVER 700 PARTICIPANTS FROM THE US AND MANY OTHER COUNTRIES. THE CONFERENCE WAS HELD IN DALLAS, TX. AS IN THE PAST PEOPLE CAME FROM TO HEAR LEADING INTERNATIONAL EXPERTS DISCUSS ADVANCED PATIENT CARE AND TREATMENT DEVELOPMENTS. THE SCIENTIFIC COMMUNITY PRESENTED ADVANCES IN DIAGNOSTIC IMAGING TECHNIQUES, NEW INSIGHTS IN THE PATHOPHYSIOLOGY OF LYMPHEDEMA, AND UPDATES ON CANCER METASTASIS AND THE LYMPHATIC SYSTEM. THE MEDICAL CONFERENCE WAS PLANNED AND IMPLEMENTED IN ACCORDANCE WITH THE ACCREDITATION REQUIREMENTS AND POLICIES OF THE ACCREDITATION COUNCIL FOR CONTINUING MEDICAL EDUCATION THROUGH THE JOINT PROVIDERSHIP OF THE UNIVERSITY OF CHICAGO PRITZKER SCHOOL OF MEDICINE, NORTHSHORE UNIVERSITY HEALTHSYSTEM AND THE NATIONAL LYMPHEDEMA NETWORK.
MARILYN WESTBROOK GARMENT FUND:SINCE 2007, THE NATIONAL LYMPHEDEMA NETWORK HAS PROVIDED ESSENTIAL COMPRESSION GARMENTS--NOT COVERED BY INSURANCE AND WELL BEYOND THE MEANS OF PATIENTS AND THEIR FAMILIES--TO FINANCIALLY NEEDY PATIENTS. PRESCRIBED COMPRESSION GARMENTS ARE AN ABSOLUTELY NECESSARY PART OF THE DAILY CARE AND MANAGEMENT OF LYMPHEDEMA. YET, MANY IF NOT MOST INSURANCE COMPANIES DO NOT COVER THESE ESSENTIAL ITEMS. IN CONJUNCTION WITH GENEROUS INDUSTRY SPONSORS AND A DEDICATED COMMITTEE OF VOLUNTEER EXPERT THERAPISTS, THE NATIONAL LYMPHEDEMA NETWORK HAS HELPED WELL OVER 1000 PATIENTS TO OBTAIN THE COMPRESSION GARMENTS THAT THEY NEED. IN 2016, THE MARILYN WESTBROOK GARMENT FUND SERVED OVER 500 PATIENTS.
PUBLICATIONS, EDUCATION, AND PATIENT SERVICES:AT THE CENTER OF THE NATIONAL LYMPHEDEMA NETWORK'S SERVICES ARE THE PATIENTS AND THERAPISTS WHO NEED CURRENT INFORMATION ABOUT THE RANGE OF CONDITIONS THAT CONSTITUTE WHAT WE KNOW AS LYMPHEDEMA. TO THIS END, THE NATIONAL LYMPHEDEMA NETWORK PUBLISHES A QUARTERLY JOURNAL, LYMPHLINK, WHICH INCLUDES RESEARCH ARTICLES, A PULL-OUT RESOURCE GUIDE TO THERAPIST TRAINING PROGRAMS, TREATMENT AND DIAGNOSTIC CENTERS, PHYSICIANS, CLINICS, THERAPISTS, SUPPLIERS, AND SUPPORT GROUPS, PATIENT PERSPECTIVES, NEWS, AND UPDATES ABOUT CURRENT TOPICS IN THE FIELD. WE PROVIDE INFORMATION BROCHURES AND SPECIAL TOPIC SHEETS, POSITION PAPERS, AND REPRINTED ARTICLES FOR THERAPIST TRAINING PROGRAMS, SUPPORT GROUPS, AND THOSE WHO CONTACT US THROUGH OUR WEBSITE, FACEBOOK PAGE, AND 800-NUMBER TELEPHONE INFORMATION LINE. THE NATIONAL LYMPHEDEMA NETWORK HOSTS AN EXTENSIVE REFERRAL DATABASE OF QUALIFIED THERAPISTS AND LYMPHEDEMA TREATMENT CENTERS, AVAILABLE FREE ONLINE. THE NLN SUPPORT GROUP NETWORK PROVIDES INFORMATIONAL AND PSYCHOSOCIAL SUPPORT TO PATIENTS, FAMILIES, AND CAREGIVERS, INCLUDING FREE LISTINGS IN LYMPHLINK AND ON THE WEBSITE. NEAR COMPLETION IS AN EDUCATIONAL KIT DESIGNED FOR DISTRIBUTION TO CANCER CENTERS TO ALERT MEDICAL STAFF ABOUT THE RISK OF LYMPHEDEMA ASSOCIATED WITH CANCER TREATMENT. THE NATIONAL LYMPHEDEMA NETWORK HOSTS ACTIVE SOCIAL MEDIA RESOURCES, INCLUDING A PATIENT BLOG, FACEBOOK PAGE, AND TWITTER POSTS.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Patricia J Egan Ms Mba | EXECUTIVE DIRECTOR | 40 | $88,148 |
| Joan White | DIRECTOR | 2 | $0 |
| Sarah Bramblette | DIRECTOR | 2 | $0 |
| Kris L Maser Jd | DIRECTOR | 2 | $0 |
| Wade P Farrow Md Cwsp Faccws | DIRECTOR | 2 | $0 |
| Nicole L Stout Dpt Clt-Lana | SECRETARY | 15 | $0 |
| Michael Cannon Mba | BOARD CHAIR | 15 | $0 |
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