Organizations Filed Purposes:
THE MISSION OF ANGIOMA ALLIANCE IS TO INFORM AND SUPPORT INDIVIDUALS AFFECTED BY CEREBRAL CAVERNOUS MALFORMATIONS WHILE FACILITATING IMPROVED DIAGNOSIS AND MANAGEMENT OF THE ILLNESS THROUGH EDUCATION & SUPPORT. THE ORGANIZATION ALSO PROMOTES RESEARCH INTO A CURE AND PREVENTION OF THE DISEASE.
FAMILY AND SCIENTIFIC CONFERENCES CONDUCTED TO DISEMINATE INFORMATION ABOUT CCM TO THOSE AFFECTED AND THEIR FAMILIES.
CREATION AND MAINTENANCE OF A PATIENT REGISTRY TO ADVOCATE, FACILITATE AND PARTICIPATE IN CCM RESEARCH IN THE PURSUIT OF A GREATER UNDERSTANDING OF THE DISEASE.
PERFORMANCE OF COMMUNITY OUTREACH, PUBLICATION OF NEWSLETTER, AND MAINTENANCE OF WEBSITE TO INCREASE PUBLIC AWARENESS, PROVIDE SUPPORT, AND BUILD A BROAD BASE OF RESEARCH FUNDING RESOURCES.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
Name | Title | Hours Per Week | Total Salary |
Amy L Akers | CHIEF SCIENTIFIC OFFICER | 40 | $39,758 |
Kandance Weems Norris | DIRECTOR | 0.5 | $0 |
Kimberly Foley Md | DIRECTOR | 0.5 | $0 |
Rona Gomel Ashe | DIRECTOR | 0.5 | $0 |
Tyler Fairbank | DIRECTOR | 0.5 | $0 |
Julia Demichiel | DIRECTOR | 0.5 | $0 |
Anthony Mayer | CHAIR | 0.5 | $0 |
Isaac Babbs | DIRECTOR | 0.5 | $0 |
Tim Gallegos | DIRECTOR | 0.5 | $0 |
Liz Neuman | DIRECTOR | 0.5 | $0 |
Karen Buck | TREASURER | 2 | $0 |
Cornelia Lee Psyd | PRESIDENT | 40 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202110339349300336_public.xml