Organizations Filed Purposes:
A global not-for-profit network of patient associations dedicated to improving the lives of people with hereditary angioedema (HAE) by raising awareness of HAE, improving diagnosis time and providing advocacy for approval and reimbursement for lifesaving therapies for individuals
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Jorn Schultz-Boysen | Director | 1 | $0 |
| Natasha Jovanovska Popovska | Director | 1 | $0 |
| Beverly Yamomoto | Director | 1 | $0 |
| Rachel Annals | Director | 1 | $0 |
| Sarah Smith Foltz | Director | 1 | $0 |
| Finoa Wardman | Treasurer | 2 | $0 |
| Michael Rutkowski | Vice President | 2 | $0 |
| Anthony Castaldo | President & Chief Executive O | 20 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202002969349301420_public.xml