Organizations Filed Purposes:
The ICA provides advocacy, research funding, and education to ensure early diagnosis and optimal care with dignity for people affected by IC.
Education: The ICA delivers critical health information and support to patients, caregivers, healthcare providers, researchers and the public. Programs include medical education programs for healthcare providers; seminars about IC for patients, family members and the public; interactive services that teach IC patients self-care strategies; educational resources, e.g. the ICA Update Magazine and weekly ICA eNews. The ICA collaborates with the Centers for Disease Control and Prevention (CDC) on IC awareness programs.
Advocacy: The disabling pain, urgency and frequency of interstitial cystitis (IC) stays with patients for their lifetime. The ICA raises awareness among legislators and key decision makers about the need for expanded research funding to find a cure and healthcare options to address the special needs of IC patients.
Research: Each IC diagnosis means a new fight for someone's spouse, parent, child or friend. There is no cure for IC. Through the "Imagine No IC" Pilot Research program, the ICA funds preliminary research, allowing scientists to gather data required to obtain larger grants for further exploration of the cause, better treatments, and ultimately a cure. Our team tracks IC research and disseminates findings across media platforms. ICA leadership also serve on government and industry research advisory committees.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Lee Lowery | Executive Director | 10 | $0 |
| Dan Vickery | Director | 1 | $0 |
| Laura Santurri | Director | 1 | $0 |
| Joellen Parsons | Director | 1 | $0 |
| Michael Jay Moss | Director | 1 | $0 |
| Robert Moldwin | Director | 1 | $0 |
| Paula Maxwell | Director | 1 | $0 |
| Abigail Jenkins | Director | 1 | $0 |
| Michael Hsieh | Director | 1 | $0 |
| Jane Elsten | Director | 1 | $0 |
| Devra Densmore | Director | 1 | $0 |
| Nicole Cozean | Director | 1 | $0 |
| Natasha Boswell | Director | 1 | $0 |
| Tony Tyler | Past Chair | 1 | $0 |
| Richard Lufkin | Treasurer | 1.5 | $0 |
| Michael Greenwell | Vice Chair | 2.5 | $0 |
| Irma Rodriguez | Chair | 2.5 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202031919349300313_public.xml