Organizations Filed Purposes:
ACCELERATING THE DEVELOPMENT OF NEW THERAPIES IN EPILEPSY TO IMPROVE PATIENT CARE THROUGH RESEARCH.
MADE AVAILABLE VAST EPILEPSY EXPERTISE WHICH WAS UTILIZED FOR ADVISORY BOARDS AND INDEPENDENT CONSULTING ACTIVITY. PROVIDED STUDY DESIGN CONSULTATION ON A NUMBER OF PROTOCOLS. DEVELOPED AND IMPLEMENTED EDUCATIONAL TOOLS FOR USE IN CLINICAL TRIALS TO ENSURE ENROLLMENT OF APPROPRIATE SUBJECTS. CENTRAL REVIEW OF DOCUMENTATION TO CONFIRM ELIGIBILITY FOR PATIENTS IN CLINICAL TRIALS.
DEVELOPED SEVERAL PROOF OF PRINCIPLE PROTOCOLS WHICH ARE AVAILABLE TO CLIENTS. IMPLEMENTED THE PREVIOUSLY DESIGNED PROOF OF PRINCIPLE STUDY TO ASSESS PHOTOSENSITIVE EPILEPSY INCLUDING SITE TRAINING. COORDINATED A MULTI-CENTER STUDY (HEP 2) TO ASSESS CLINICAL CHARACTERISTICS AND BIOMARKERS PREDICTIVE OF DISEASE OUTCOME, PROGRESSION, AND TREATMENT RESPONSE IN PARTICIPANTS WITH TREATMENT-RESISTANT FOCAL EPILEPSY. CONTINUING TO FOLLOW SUBJECTS WITH NEWLY DIAGNOSED EPILEPSY IN THE HEP 1 STUDY.
PREPARE AND ORGANIZE MULTINATIONAL SYMPOSIUM ON EPILEPSY TRIAL DESIGN AND IMPLEMENTATION.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Maryann Brodie | EXECUTIVE DIRECTOR | 40 | $171,363 |
| Bree Diventura | CO-EXECUTIVE DIRECTOR | 40 | $149,890 |
| Tracy L De Vito | ADMINISTRATIVE-STAFF | 40 | $121,249 |
| Michael Sperling | VICE PRESIDENT | 1 | $3,666 |
| Dennis Dlugos | VICE PRESIDENT | 1 | $0 |
| Jacqueline French | PRESIDENT | 5 | $0 |
| James Lintott | TREASURER | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202041719349300934_public.xml