Organizations Filed Purposes:
TO INVEST IN BETTER LIVES FOR PEOPLE WITH NEURODEGENERATIVE DISEASES. INITIALLY, ADIRA WILL FOCUS ON FIVE NEURODEGENERATIVE DISEASES THAT ARE HIGHLY COMPLEX AND HAVE MUCH IN COMMON: ALZHEIMER'S DISEASE, ALS, HUNTINGTON'S DISEASE, MULTIPLE SCLEROSIS, AND PARKINSON'S DISEASE.
ADIRA'S PROGRAM ACTIVITIES HAVE FOLLOWED THE ORGANIZATION'S LISTEN, LEARN AND ACT APPROACH TO IMPROVE THE LIVES OF INDIVIDUALS IMPACTED BY NEURODEGENERATIVE DISEASE. PROGRAM ACCOMPLISHMENTS INCLUDE SUCCESSFULLY ENGAGING INDIVIDUALS LIVING WITH THESE DISEASES, THEIR CAREGIVERS, AND RELATED HEALTH AND ADVOCACY PROFESSIONALS THROUGH IN-PERSON DISCUSSIONS, SURVEYS AND CONVENINGS TO HEAR WHAT NEEDS ARE MOST URGENT AND UNDERSERVED, DEVELOPING PARTNERSHIPS WITH ACADEMIC INSTITUTIONS, EXPERTS ON ISSUES OF DIVERSITY, INCLUSION, AND EQUITY AND EXPERTS ON DATA COLLECTION AND APPLICATION TO LEARN HOW ADIRA'S MODEL AND PROGRAMS CAN BETTER SERVE OUT COMMUNITIES; AND FUNDING NON-PROFIT ORGANIZATIONS SERVING INDIVIDUALS IMPACTED BY NEURODEGENERATIVE DISEASE TO SUPPORT PROJECTS FOCUSED ON IMPROVING ACCESS TO SERVICES, SUPPORTING MENTAL AND PHYSICAL HEALTH, ASSISTING CAREGIVERS, AND ADDRESSING ISSUES OF DISABILITY THROUGH ADIRA'S GRANT PROGRAM AND THROUGH OTHER FLAGSHIP PROJECTS.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Greg Smiley | EX OFFICIO | 40 | $180,631 |
| Ann Lefert | CHIEF PROGRA | 40 | $110,647 |
| Helen Frary | BOARD OF DIR | 1 | $0 |
| Bruce Rector | BOARD OF DIR | 1 | $0 |
| Bruce Packett | BOARD OF DIR | 1 | $0 |
| Cheryl Sullivan-Staveley | BOARD OF DIR | 1 | $0 |
| Laura Hanen | BOARD OF DIR | 1 | $0 |
| Zen Melesse | SECRETARY/TR | 1 | $0 |
| Alan Abramson | CHAIR-ELECT | 1 | $0 |
| Jim Rock | CHAIR | 1 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202023179349301717_public.xml