Organizations Filed Purposes:
THE CHRIS ELLIOTT FUND/ENDBRAINCANCER INITIATIVE IS DEDICATED TO ENHANCING LIVES AND ENPOWERING PATIENTS BY CLOSING THE GAP FROM INITIAL DIAGNOSIS TO IMMEDIATE AND EXPANDED ACCESS TO ADVANCED TREATMENT, CLINICAL TRIALS, STUDIES AND CRITICAL CARE THROUGH
"DIRECT CONNECT" PATIENT & SUPPORT PROGRAM: EBCI DIRECTLY AND PERSONALLY CONNECTS PATIENTS, CAREGIVERS & FAMILIES TO TOP BRAIN TUMOR SPECIALISTS FOR 2ND/3RD/4TH OPINIONS, SURGERY AND TREATMENT OPTIONS AND TO PRINCIPAL INVESTIGATORS, ADVANCED TREATMENTS, CLINICAL TRIALS AND TRANSLATIONAL MEDICINE. EBCI CURRENTLY HAS @ 7500+ MONTHLY TOUCH POINTS AND OPPORTUNITIES TO EDUCATE AND DIRECTLY SERVES OVER 998 PATIENTS, FAMILIES AND CAREGIVERS ANNUALLY ON A ONE-ON-ONE BASIS INCLUDING CASE MANAGEMENT. CEF RECEIVED IN KIND DONATIONS VALUED AT $20,517.
BRAIN TUMOR DISEASE, EDUCATION AWARENESS, AND OUTREACH PROGRAM: EDUCATION-AWARENESS-OUTREACH THROUGH CREATION OF EDUCATIONAL MATERIALS FOR PATIENTS AS WELL AS THE MEDICAL COMMUNITY AND THROUGH THE USE OF DIGITAL COMPONENTS, WEBSITE, SOCIAL MEDIA, ONE-ON-ONE EMAIL INTERACTIONS, ONLINE SUPPORT GROUPS, ONE EDUCATIONAL CONSULTING, VIA SMALL GROUP MEETINGS, SPEAKING ENGAGEMENTS, CREATION OF EDUCATIONAL VIDEOS AND ARTICLES LARGE SCALE DISTRIBUTION THROUGH OUR MEDIA PARTNERS. IN 2019, EBC PROVIDED OVER 8 MILLION OPPORTUNITIES TO EDUCATE PATIENTS, CAREGIVERS AND FAMILIES AS WELL AS THE GENERAL PUBLIC. IN 2019, CEF RECEIVED IN KIND DONATIONS VALUED AT $29,310.
BRAIN TUMOR PATIENT ADVOCACY AND ACCESS PROGRAM: THIS PROGRAM FOCUSES ON WORK WITH THE FDA FOR APPROVAL OF NEW TREATMENT OPTIONS, NRG ONCOLOGY, CLINICAL TRIAL DEVELOPMENT, REMOVAL OF BARRIERS STOPPING IMMEDIATE ACCESS TO TREATMENTS,UPDATES TO NCCN GUIDELINES, BUILDING OUT OF OUR MEDICAL ADVISORY BOARD&NETWORK, WORK AT THE FEDERAL AND LOCAL LEVEL FOR REIMBURSEMENT, WORKING WITH INSURANCE COMPANIES FOR PATIENT COVERAGE AND ADVOCATES FOR NEW TREATMENT OPTIONS AND CONTINUED INVESTMENT BY INDUSTRY INTO CLINICAL TRIALS/TREATMENT OPTIONS FOR THIS PATIENT POPULATION. IN 2019, CEF RECEIVED IN KIND DONATIONS VALUED AT $96,723.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Dellann Elliott Myland | CHAIR, PRESIDENT & CEO | 40 | $56,250 |
| Peter Buttler | TREASURER | 10 | $1,055 |
| Claire Tinker | SECRETARY | 10 | $0 |
| Riley Elliott | VICE PRESIDENT | 5 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202001239349300400_public.xml