Organizations Filed Purposes:
THE HUNTINGTON'S DISEASE YOUTH ORGANIZATION OF AMERICA IS A NON-PROFIT ORGANIZATION SET UP TO SPECIFICALLY PROVIDE SUPPORT FOR YOUNG PEOPLE AROUND THE WORLD IMPACTED BY HUNTINGTON'S DISEASE. THE ORGANIZATION PROVIDES SUPPORT, EDUCATION AND GUIDANCE TO YOUNG PEOPLE AND THEIR FAMILIES IMPACTED BY HUNTINGTON'S DISEASE AND PROMOTES AWARENESS AND PROVIDES EDUCATION WITHIN PROFESSIONAL SETTINGS FOR THOSE WORKING WITH HUNTINGTON'S DISEASE FAMILIES.
SUPPORT YOUNG PEOPLE AROUND THE WORLD IMPACTED BY HUNTINGTON'S DISEASE.
ANNUAL NORTH AMERICAN YOUTH CAMP: ALL EXPENSES PAID, 4-DAY CAMP FOR YOUNG PEOPLE FROM HUNTINGTON'S DISEASE FAMILIES THROUGHOUT NORTH AMERICA. CAMP IS FULL OF SUPPORT, EDUCATION, CONNECTION AND PROVIDES A FUN OUTLET TO HELP YOUNG PEOPLE FORGET ABOUT HD AND LEAVE CAMP WITH A MORE POSITIVE OUTLOOK ON LIFE. CAMP TOOK PLACE FOR THE 3RD YEAR IN A ROW IN MARYLAND.
DIRECTOR OF YOUTH SERVICES ROLE; OUR DIRECTOR OF YOUTH SERVICES IS OUR SINGLE EMPLOYEE IN THE US. THEY WORK OUT OF GEORGETOWN UNIVERSITY'S HD CENTER AND PROVIDES FACE-TO-FACE AND VIRTUAL SUPPORT TO YOUNG PEOPLE AND FAMILIES THROUGHOUT THE COUNTRY, WHILE MOSTLY FOCUSING ON THE MID-ATLANTIC REGION IN THE USA.
HDYO UK GRANT SUPPORT: HDYO OF AMERICA SUPPORTED OUR SISTER ORGANIZATION, ALSO KNOWN AS HDYO, REGISTERED AS A CHARITY UNDER THE UNITED KINGDOM CHARITY COMISSION. OUR GRANTS PROVIDED FUNDS FOR THE CREATION AND SHARING OF JOINT RESOURCES INCLUDING A WEBSITE, BROCHURES, EDUCATIONAL PROGRAMS, AND MUCH MORE. OUR SISTER ORGANIZATION WORKS INSYNC WITH HDYO-AMERICA TO COMBINE OUR EFFORTS TO PROVIDE THE BEST SUPPORT POSSIBLE FOR ALL YOUNG PEOPLE AROUND THE WORLD IMPACTED BY HD.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
Name | Title | Hours Per Week | Total Salary |
Lindsay Morrison | BOARD MEMBER | 2 | $0 |
Dr Bonnie Hennig | BOARD MEMBER | 2 | $0 |
Seth Rotberg | BOARD MEMBER | 5 | $0 |
Bryan Viau Jr | CHAIRPERSON | 15 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/201943199349320049_public.xml