Organizations Filed Purposes:
The Foundation's mission is to increase public awareness of the challenges children diagnosed with cancer face, and raise money to fund research for less toxic, more targeted treatments and cures.
Based in Miami, Florida, SebastianStrong Foundation is a registered 501(c)(3) charity that honors the life of Sebastian "Sebs Ortiz (2000-2016) by increasing awareness of childhood cancer and raising money to fund research for less toxic, more targeted childhood cancer cures. This mission was born from the example of STRENGTH set forth by Sebs during his courageous 14-month battle with rhabdomyosarcoma. Since his passing, the Foundation bearing his name has bolstered the support of donors from across the country. SebastianStrong has awarded several grants to date for pediatric cancer research.
SebastianStrong Foundation's focus is on funding cutting-edge Pediatric Cancer research. We aim to fund research that focuses on less toxic and more targeted treatments and cures - from finding ways to make chemotherapy treatment less toxic and more effective, to finding ways to teach the body to fight cancer. Projects are selected through a rigorous review process by our medical advisory board. At times, projects go through more than one review cycle, as when we partner with other foundations to jointly fund a project. In those cases, projects are reviewed by scientists and doctors on more than one medical advisory board.
SebastianStrong Foundation works to bring awareness and knowledge of childhood cancer to the general public as well as childhood cancer families through awareness, educational and volunteer activities. SebastianStrong routinely educates the general public through guest lectures/presentations at schools and community events. We also participate in family/patient activities at local hospitals. We offer volunteer activities, which allow people to get involved in increasing awareness and knowledge of the cause. We provide scholarships to high school seniors pursuing STEM careers to encourage growth in the field and to feed the well of future researchers.
Executives Listed on Filing
Total Salary includes financial earnings, benefits, and all related organization earnings listed on tax filing
| Name | Title | Hours Per Week | Total Salary |
|---|
| Rose Ortiz | Operations Manager/ Board | 40 | $0 |
| Armando Lapido | Board Member | 1 | $0 |
| Ramon Branger | Board Member | 1 | $0 |
| Kelsey Weaver | Board Member | 2 | $0 |
| Joan Susie | Chairperson | 5 | $0 |
| Alexander Sueiro | Board Member | 5 | $0 |
| Taylor Binder | Board Member | 1 | $0 |
| Oscar Ortiz | Executive Director/ Board | 15 | $0 |
| Rebecca L Mendez | Board Member | 1 | $0 |
| James Mcallister | Board Member | 10 | $0 |
| Jose E Cueto | Board Member | 1 | $0 |
| Javier Vazquez | Board Member | 1 | $0 |
| Danny Martinez | Board Member | 1 | $0 |
| Frank Gonzalez | Board Member | 1 | $0 |
| Luis De La Aguilera | Board Member | 2 | $0 |
Data for this page was sourced from XML published by IRS (
public 990 form dataset) from:
https://s3.amazonaws.com/irs-form-990/202013219349311956_public.xml